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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-21-2011, 10:17 PM
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Junior Member
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hello.i hate to bring all ofyou down,but i am in so much pain today.i worked a few hours today and i hurt so much i could not think of what i was doing.the pain gets so bad all i can think of is pain.i went to bingo tonight but had to go home because of the pain.i hope i am in less pain in the a.m. i have to for my wife and kids.someday i will be better i just no it.well i am going to bed now,thank you for being there for me.it is nice to know i am not alone.
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04-22-2011, 09:57 AM
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Jeff, you definitely are NOT alone. This is a good place for support, ideas, and sometimes just to vent a bit.
I am in less pain in the AM. Pain is progressive for me through the day. So I schedule my day around my pain (which I'm sure many of us do!) Pain is a difficult thing to understand. Very, very unique. Everybody perceives it differently. Heck, even many of the professionals I've dealt with are not too in tune with it. Some definitely though are better than others. Important to find professionals that have significant experience with pain and a little compassion to boot never hurts. I've read a few books on pain (library is good source and gotta like the price) and while I find the dynamics of pain interesting, it is a bit depressing as that is what I've been spending my spare time reading!! But as they say "knowledge is power" and trying to understand every aspect of CRPS is helpful in and by itself. Hope you are having a better day today Jeff. |
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| "Thanks for this!" says: | wswells (04-22-2011) |
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04-22-2011, 10:30 AM
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Dear Jeff
I am SO Sorry that you had such a bad night. YES, I promise you will have better days. this is a great place to be lifted up from you pain and fears. We are here for you and understand the lows...all to well! There is another thread talking about how pain increases with bad weather. is that something that was going on in your town last night? If so i hope the sun is out there today for you. I have been in pain and all my pain meds just arent working...I have gone to the ER and I was having other medical problem and they hospitalized me or a few days. Got my where i could control it at home. Is the pain out of control where you need to go to the ER or call your doctor for more help? Its Friday...dont be hero and wait till the last minute when your doctors office is closed. Hugs and blessings Lori Quote:
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Wishing you a day of pain free movement that turns into forever! |
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| "Thanks for this!" says: | wswells (04-22-2011) |
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04-22-2011, 10:46 AM
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wishing you a better day! I know sometimes heat ( heating blanket) wrapped around me just comforts me and calms my tension from being in pain....relaxing my tense muscles for a bit....good luck
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Live, Laugh, Love~ . |
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04-23-2011, 09:11 AM
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In Remembrance
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Jeff, never worry that you're bringing anyone down here!
You have a great attitude about the future. I have a question, do you have adequate pain control? You didn't mention, and I don't recall.. It seems that could be an issue, to get on a good regimine of meds (a cocktail), and stay with it. Not prn, but something you can stick to. It'll make your life more predictable. I've had rsd, and many other things since 83, took 7 yrs for dx, then, I started to learn the differences between good doctors (difficult to find) and so-so drs, and worthless drs. I've been with my neuro now for 20+ years, and am happy with my meds, while I still have 'face down' days, life is OK. Pete asb |
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| "Thanks for this!" says: | cindi1965 (04-27-2011) |
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04-23-2011, 09:33 AM
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Magnate
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I am sorry for your pain. You are not alone. For myself during ruff times I just try to get through the day or even hour the best I can. Thinking ahead creates too much anxiety. I try to remind myself it just takes 1 doctor or 1 treatment/med to make a world of difference for the better. Hope you are feeling better
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04-23-2011, 12:50 PM
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You don't say how long you have been sick. i think that there is a point during the first several years where sometimes it seems like we start to flare out of control. and it takes a while to get a handle on the combo of meds, treatments, PT, psych, etc that we need to learn to live with this beast...
Try to get to the very best RSD doc that you can. For me, that has been a certified PM/anesthesiologist. The neuros in RI that I consulted happen to suck when it comes to RSD. Everyone is different. I've learned there is a very definite limit on what I can do. I go to bed early every night, so that I can get up early in the morning. working full time is the only commitment I generally make during the week, with few exceptions. weekends I spend with my husband and neighborhood friends, but I never stay out late anymore, and I take a nap both days. And I try to walk 3 to 5 miles a day for my RSD. Good luck, and hang in there, xoxox. Sandy Quote:
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04-23-2011, 03:16 PM
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I think we all feel the most alone when in pain yet I know I personally kind of do want to be left alone as I don't want to take others down with me and don't want them seeing or thinking of me that way. I also find I can't really tolerate their kind and good willed words of comfort and cheer. It kind of grates on my nerves even more as I know they'll never fully understand this pain (and for that I am grateful).
I also don't trust myself emotionally to handle a conversation with others during those times as I know I can be truly awful and not at all myself, it really brings out the worst in me. This forum really is one place you really need to know you aren't alone and aren't bringing anyone down, half of us may already be there anyway!  As hard as it is, like so many other things, I think you just have to take it a day at a time. I know there have been days I went to sleep thinking tomorrow was going to be awful with pain and for whatever reason, I was blessed with a reprieve so you just never know. I do hope you and everyone else has a wonderful and pain free day as possible tonight and tomorrow. Dawn |
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04-23-2011, 06:42 PM
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Hello Everyone..... I just want to say..I have enjoyed and learned from everyone's posts here... I also want to say that I am here for you all...Iam so sorry for our disease....and all of the nasty effects from it!!!Have a blessed Easter.. Love, Kathy |
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