Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-25-2011, 07:42 AM #15
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Dear Priscilla,

I was able to go off of Fentanyl when I started receiving ketamine infusions in April of 2010. I began with the 10 day low dose outpatient protocol. Previously, I had had 8 stellate ganglion Blocks, 1 lumbar block, 8 lidocaine infusions (300 mg each), and tons of PT. I had also been on many pain meds.

I still take a lot of meds and have RSD symptoms, it is just much more manageable than before. ketamine has changed my world for the better.

Your doctor would be able to tell you which pain meds you could try to improve your ability to control your pain, like Dilaudid. Many on this board have had great results with methadone. or perhaps you could start switching your Fentanyl patch every 48 hours instead of 72.

Nigel from this board is in Germany ( or is going there soon) for ketamine treatments with Dr. Rohr. Perhaps you could touch base with him?

Please take care and never lose hope...xoxox. sandy
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