hello, my name is Amy. I am 21 years old, almost 22. I live in Kansas. I was diagnosed with RSD after have a steriod injection in September 2010 for tendinitis, in the wrong place, which set off all my symptoms of RSD. It wasnt until countless doctors and weeks/months later, they decided I had RSD. I dont really have the physical symptoms, not yet anyways. My arm and hand ache / burn / and also have shooting pains every single day. I also get swelling in my hand when I try to use it too much. My hand is throbbing as I write this, and its hard to do, but I suck it up and go through the pain.
I have had 3 ganglion nerve blocks. the first helped for 7 hours. the second works for 5 days. the third didnt help at all, and now im feeling pains where i hadnt felt before. I hope it hasnt spread, but im not sure if that can happen from the nerve blocks. Anways I am going in the morning to get a 4th one since the third didnt work.
I take Neurotripyline, Neurotin, and have a Ketamine cream that I got from traveling all the way to Mayo this March. This all helps me, but not completely. I still have the pain, just not as bad. I have a husband, who I have been with for 8 years, which this pain seems to have brought us closer together, and family and friends that support and pray for me, but i still feel alone at times, like no one around me REALLY understands . I hate feeling like my life is gone at 21 years old. I can never go ice skating with my husband, like we did when he proposed to me.. i cant go to amusement parks with my friends and ride on the rides, because if its not bumpy, the breeze with kill my arm instead. I cant go to concerts because its too crowded. I would barely go outside my house this winter, except to appointments because the cold killed me. I cant do anything that a 21 year old does. I cant even have kids, because I found out I have a pituitary tumor, which causes you to have crazy horomones that act like your pregnant, even though your not, plus all the medicines I take, even if i didnt have the tumor, i wouldnt want to get pregnant with all these drugs in my body. sorry im rambling on, i just found this forum and thought it was great i could type my thoughts, and read others as well.