Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-23-2013, 01:06 PM #16
HeidiB's Avatar
HeidiB HeidiB is offline
Junior Member
 
Join Date: Apr 2013
Location: Holiday, Florida
Posts: 67
10 yr Member
HeidiB HeidiB is offline
Junior Member
HeidiB's Avatar
 
Join Date: Apr 2013
Location: Holiday, Florida
Posts: 67
10 yr Member
Default

Im So sry for the pain you are going thru, Im @ my 9yr mark living w/RSD so I know exactly what your going thru & how unbareable it truly is day & night. I have 2 girls my 6yr old only knows me this way but my 14yr old had a hard time adjusting to how much it changed not only me but us & all the things we couldnt do together like we had once done. Everyday is a fight w/in our selfs I have learned to just deal w/each day as it comes & only worry bout today not yesterday or tomorrow cuz I personaly dont know how I'll feel from one day to the next or how bad the pain's going to be etc.

I know its harder as time goes on not to mention more painful but if you ever want to talk hit me up & from what Ive seen this site is awsome the other peps on here w/RSD are so willing to help eachother out & it's made me feel less alone in the world honestly. I havent been well lately so I havent even gotten on the computer for awhile but today is so far a little better than I expected so I wish u happiness & hope you feel better soon, I'll be thinking of you & remember your a fighter & stronger than you mite think
~Heidi

Quote:
Originally Posted by Angelina55 View Post
I just can't take it anymore. It is getting worse by the day. I have developed a new symptom even. At times I feel like there is acid on my leg in spots. And I haven't figured out why or what is causing it. And the pain...OMG! It is a constant 24/7 intense 10. I am just tired of crying all the time. I can't catch a breather. I feel so bad for my daughter because she will accidently hit me and I like almost screem and start crying and I try my hardest to reasure her that it is ok but I know that it hurts her.

I get my results back from my phsyc evaluation tomorrow then if that is ok (which I am sure it will be) then I get my trial SCS thursday. But I have so many fears and worries. What if something goes wrong? What if it makes me worse? What if it doesn't work? I can't keep living like this with no support. A person with this condition can't do it all on their own. And I don't know how to get my family and friends to understand that. That I need their love and help right now. They just don't get it. They just think I am weak. That I am too old to need help. It just breaks my heart that no matter what I would be there for them but when I need someone, no one will help me. I don't know what to do.

I am sorry, I just can't sleep and am in sooo much pain. I just needed to try to "talk" to someone. To let it out. I hope everyone is doing better than I am! And I hope you all have a wonderful week ahead!
HeidiB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (05-25-2013)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
It Won't Stop!!!! Margarite Traumatic Brain Injury and Post Concussion Syndrome 2 10-10-2012 08:17 AM
Why won't this stop?? village crest Traumatic Brain Injury and Post Concussion Syndrome 8 06-18-2012 09:16 AM
Can Everything Just Stop Shadiyah Multiple Sclerosis 8 05-31-2012 06:13 PM
Does it ever just stop?? misshayleesmom Multiple Sclerosis 3 01-12-2012 01:11 PM
When you really stop to think about it... Jim091866 Parkinson's Disease 13 06-27-2008 02:06 AM


All times are GMT -5. The time now is 12:06 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.