Hello Heidi,
I am sorry you are dealing with such awful pain. Have you asked for an increase in medication?
I live near you, and I do have the name of several Pain specialists in my area. One of which does Ketamine infusions. (He did for spinal trouble) I don't know however if he treats with that for CRPS. It may be worth it to call and find out how experienced either of these doctors are with this condition. PM me and I will give the name and numbers of these physicians. I really hope you can find some relief, so you can again enjoy some of life. Don't give up hope. I know for sure Tampa Bay Hospital works with Ketamine. ginnie

Hi Heidi,

Boy do I get the situation you’re in. I too have had CRPS/RSD for a long time now and up until recently did not have insurance for several years and was dependent on whatever care I could get. Often and sometimes still, I have to go to the hospital ER to handle acute pain, to help me “get ahead of the pain”. I war with myself as to if I go or not. If the pain gets ahead of you, you can play hell trying to turn it around, and may never without the help of the big guns the hospital can offer. Maybe they can give you something (Rx) that will help until you see your doc. Are you on anything for the seizure that perhaps will also help with the pain?

The ER is such a crap shoot as to how they will treat you, in every way. I can’t tell you how many times I could tell they were questioning if I was drug seeking. That is so frustrating, but it happens a lot. That’s they’re issue, yours is getting your pain under control. Go to the ER hon, don’t suffer. I know, God do I know, how I fight to avoid the place at all costs. BUT they have an obligation to treat you.

As I’m sure you know, Chronic pain is now understood to be a disease, even if they don’t understand what CRPS is, surely the “professionals” at the hospital know this. I’m sure you’ve done this before, but explain that you’re having breakthrough pain (acute pain).

Gosh I hope you get some help soon. Please, if you can, go to the ER if that is the only option and plead your case. I hope you get relief soon!

Have you tried ibuprofen not sure if you can mix with what you are taking but any pharmacist could tell you. That is the only thing my doctor gave me for pain.