I just wanted to say also on this freezing thing, I still think a block might be in order first. Even with the freezing it is invasive and could cause the RSD to go inside of you. Let me tell you, I know this for a fact.

Ada

Thanks Ada,

I will make sure to talk that over with the doc.

They finally called this morning from the ins. I have to make some more calls it seems. Ugh, it never ends with these ppl. Medicare can be such a joke.

Hugs
Debbie

You think Medicare is a joke right now just wait until these new cuts come out on it.

I was just told by my oxygen lady a bunch of cuts in that department and there are more coming in other areas along with the schools.

I hope though they do pay for it. I know 6 months before Bill passed they wouldn't even buy him an electric scooter.

Ada

Yea Ada, I can only imagine. It's only gonna get worse. It's a big joke. We definitely could go for universal healthcare in our future. I just wish I could get them to do something now.....so all this would stop...


Hugs
Debbie

Hey Girls...
I know this post is old, but I have to bring up this topic again because it is effecting me.
I am 28 years old and have ALWAYS have nolmal periods. They have been very light periods and have usually lasted 3 days at the most.
I was diagnosed with RSD in Aug 06 of the rt. foot and Full-body, Systemic RSD in Jan 07. I had a baby in Dec. 07 and my periods still were normal but lasted about 5 days.
Then, about 4 months ago I started having heavier periods and they would end at day 5, and start back up at day 8 but they would be very light and brownish dishcharge (sorry to gross out you guys reading) So, I thought this was just the end of the period coming a little late. Now, by month 4 it seems like the bleeding is just coming and going from day 8-16 or more.

Plus, I was having pain during sex (which I never had before). I feel burning, and basically I feel RSD (that is what my gut tells me)

So, I decided to go to the Ob/Gyn, because it was also 1 year post birth of my 1 year old. I got my results today and there was nothing wrong. My Ob tells that RSD has spread to my Uterus

What are everyone's thoughts on this??

Thanks!!

I've never heard of RSD spreading to a uterus, but maybe others have.

I know how you feel, as I had similar issues for two years before my recent hysterectomy, and my pain went up when I had my periods so it was a big nightmare, that is thankfully all over now. Mine wasn't related to my RSD, it was a separate issue believed to be a byproduct of getting my tubes tied when I had baby #4.

Hopefully some others can offer you some insight on this, and I'd ask your pain specialist what he thinks, but from my understanding RSD can't affect your reproductive organs. I hope you get to the bottom of it soon.

x Kate

Here is an article at the RSDSA which addresses the issue of undiagnosed internal organ pain and rsd: http://wehelpwhathurts.homestead.com/visceral.html

Here's an article at the RSDSA on pelvic pain and rsd: http://www.rsds.org/3/education/pelvic_pain_gerwin.htm

Here is Hooshmand's puzzle about rsd and internal organs. Right after the 2nd paragraph he mentions in the one sentence there about inflammation of the ovaries: http://www.rsdrx.com/rsdpuz4.0/puz_34.htm

That's all I can find on it. I have known a couple of women, in the past almost 6 yrs I've had rsd, who also had pain in the pelvic region/uterus that was rsd as there was nothing else it could have been. Every test was normal and they were fully checked out.

I believe you can have rsd pain anywhere inside and out. The nerves in our bodies touch every single thing inside of us, ergo, rsd can affect anything it wants to. I'm very sorry that you're having pain in that area. As if rsd wasn't bad enough just in our limbs. In cases like this, hope this doesn't sound funny, but I hope with pain being in a spot like this, that it's something else, like a cyst or fibroid. That at least can be taken care of one way or another and will make the pain go away.

Hugs,

Karen

Thank You for this...I appreciate your care on this. I will print these and bring them to my PM right away. He will be so stoked that I found someone that found something on the topic.

I know that there is nothing else that it could possibly be, after reading the 3 articles.

Thanks again,
Heather

Karen,
That is very interesting info you gave on the pelvic pain. Thanks for that.

I am dealing with exactly those issues. I do believe I have RSD inside and out in my pelvic area. I have been given triggerpoint injections inside and outside.

The weather sets me off so bad and now it has spread through my legs and my feet. My legs get ice cold. I am sore to the touch, inside and out.

They have checked me for everything going. I do know that I have IBS, and volvodina, interstital cystitis but we have been able to get some of these issues under control. Right now we are working on the IBS.

I have no doubt that I am dealing with RSD in my pelvic area and it came from the last surgery I had about 4 years ago to remove scar tissue. They went in again a couple of years ago and removed some scar tissue but each surgery has made it worse due to not having a block in the lower half. We now have a PM Dr. in the hospital here so I am hoping others donot deal with this like I am doing.

I do believe in blocks.

Thanks girls for great info and great help to all of us.

Ada

Glad I helped you out Ada and Heather. I'm a research whirlwind! LOL I can phrase something 10 different ways to find what I want, plus I have TONS of sites bookmarked, even many different pages on the same site and all kinds of articles. It's very interesting to read, no matter what it involves. Even if I'm not dealing with it myself, I know someone out there will bring it up eventually. I wish no one had to deal with any of it, but it's nice to know there are some "answers" out there. It just takes some digging. I found those articles phrasing things about 3 or 4 different ways and going through the first 3-4 pages. They're the only articles that popped up over and over that dealt with the issue. All the other sites were just rsd sites or talking about cancer or something.

Hugs,

Karen