Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-05-2011, 10:34 AM #21
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Dear Sherry,
I am a chiropractor in Delaware that has been recently working on a patient with RSD and have had really solid results with her so far. I'm in a battle with her workers compensation company and need to gather research. I saw that you wrote that you went to a Neuorlogist in Philadelphia that said chiropractic is great for RSD. I wanted to know if you would give me his name, so I can contact him myself to see if he knows of research that validates chiropractic's role in the treatment of RSD. Thankf for your help,

Dr. McDermott

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Originally Posted by SBOWLING View Post
Hello Kathy,

I would be strung out on meds if it were not for my chiropractor. He DX me and has been treating me for 8 years. I got very lucky and bought an insurance that he offered I pay 217.00 per month. It covers a family of 4 and all the treatments and x-rays that are needed. This plan was a blessing from God.
I have full body RSD it has effected my lungs and heart. I see my chiropractor 3 days a week and sometimes 5 if I am flaired (he no longer offers the insurance) I went to Philly to see an RSD research doctor. He said chiropractic care is the best things I can do for myself. He is an activator chiropractor he uses a small spring loaded instrument to adjust my spine. I am too tender for him to use his hands. His adjustments really help with the chronic fatige.
It works for me and I am glad I found my DC.
Take care,
Sherrie
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Old 12-05-2011, 12:01 PM #22
AintSoBad AintSoBad is offline
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Dr Robert Schwartzman.
He dx'd me after my Chriro sent me to him.That was after 7 years and literally more than 100 doctors, back in the 80's when nobody knew what rsd was/is.

Now, I'm amazed that in Philly, almost every doctor is well aware of it.

I worked with Dr S, and my attorney (Not WC), and broke all records for a settlement with RSD. I later (as God would have it) met the fellow from the ins. company who settled my case (signed the check), and he was telling me about this crazy new disease, (a case he had just settled) that must be cured very quickly, if at all. I shook his hand, and told him that he was talking about me. Told him my name, and he knew. This was in the FLA Keys. Far from where we both live.
Believe me, these insurance companies know what RSD is, the first time you mention it. All their adjusters are aware, and they love to deny, deny, deny.
Thank your politicians, for accepting all the ins company special interest money. (I maybe shouldn't of said that?)
After all, it IS the Big companies like Nationwide, State Farm, Allstate, etc. that WRITE our Ins. law!

What to do?
FIGHT YOUR BATTLE!
DON'T GIVE UP! Problem is, that good attorneys are tough to find. If they have an ad in the YP's, stay away. A good lawyer will only have a listing. Usually, the bigger the ad though...... They're just 'settling' lawyers, not trial lawyers. You MUST have a trial attorney! One who will build the case. And, drive You through your own pain!

Pete
asb
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"Thanks for this!" says:
SandyRI (12-06-2011)
Old 07-03-2012, 08:26 PM #23
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Originally Posted by kathy d View Post
Thanks all for your help with the chiropractics suggestions. I appreciate your input. I just sent all the paperwork in to fight the works comp for me to keep my chirop. (and I am taking her to court with me this time)...and yesterday I got a ltr in the mail from ins saying they want to review me having to have Ketamine treatment done!!! I have only been waiting over two and a half years for this treatment and NOW they are questioning me to have it done. I just sat and cried yesterday. I don't know what they could say since they can't claim my chiropractor made me much better because they are refusing to pay that bill. I don't know how these people sleep at night. Thanks for all your help and ideas. The fight marches on.
Take care,
kathy d
I agree about the Chiro. I know everyone is different with their RSD and responses to treatments. I agree, if it works and helps you out, go for it. I too have a wonderful Chiro, who has helped me through this. Good luck with your fight for coverage with the chiro. It is very frustrating, when you see some relief from Chiro and they say they wont cover you. So sorry you need to deal with that. Hang in there.
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Old 07-05-2012, 06:42 PM #24
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I have found that one of the best things is massage therapy if you can find someone who will work with you on your pain levels. Also, my chiropractor does slow stretching before adjustments and then uses a pro adjuster which is a much nicer form of adjusting. I would never recommend manipulations, but gentle Pro Adjuster. Prayers.
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Old 07-05-2012, 11:05 PM #25
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Hey ask my mother she goes to her chiropractor to cure the flu!!!!! me I will never go back after two chiropractors caused me weeks issues with my back when I was younger.. now massage sure just not on red. but I would be willing to try acupuncture therapy
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Old 07-06-2012, 08:57 PM #26
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Hey ask my mother she goes to her chiropractor to cure the flu!!!!! me I will never go back after two chiropractors caused me weeks issues with my back when I was younger.. now massage sure just not on red. but I would be willing to try acupuncture therapy
Chiropractors...Hmmm, let me see...generally they have helped me over the years. Some are very bright, better than some MD's I know. Others are complete half-wits that I wouldn't let manipulate my dog (although I might let my dog manipulate them - interesting thought). After CRPS, chiropractic didn't hurt, not sure how much it helped....massage sent me over the edge, really messed me up. I always felt soooo much worse after a massage post-CRPS diagnosis....sometimes to the point of tears. Too bad, I really used to enjoy a good massage!

Accupuncture...I could never get beyond the mental-thing of someone sticking needles into my body while I just lay there. And some call that relaxing? If someone sticks needles in me, there needs to be some lidocaine or something in them (or something systemic in me!)....
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Old 07-13-2012, 02:55 PM #27
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Originally Posted by AintSoBad View Post
It took 7 years for my rsd diagnoses. During that time, and long after, my chiropractor kept me moving. He was in fact, the person who realized I had rsd! And, sent me to dr S.
He's very gentle. Not just popping bones, but slowly stretching. Using the hot packs, cold packs electric stim, whatever he needed. Gentle massage.
He gave me a far improved range of motion, with less pain.
Osteopathic doctors are too "Rough".
But a good, gentle chiropractor who understands rsd and tos, can do a great job in taking away some day to day misery!

Pete
ASB
I agree with a gentle chiro can help with your day to day misery. My chiro who has been beneficial in my diagnosis of RSD, has been experimenting with cold laser. Some days I do not find a lot of relief but other days I can have a few to four hours of reduced pain. In my eyes, that is better then nothing. Take care
Beth
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Old 01-11-2013, 02:42 AM #28
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Crazy needing some advice and support...

Hi I have had RSD/CRPS for 12 years now. I sprained my left ankle when i was 11, was finally diagnosed 2years after the injury, and it traveled to my whole left leg, both hips and lower back. I have tried everything from nerve block shots, epidurals, physical therapy (which it made me worst), and i also have the spinal cord stimulator. For the last 2years i have had a doctor up in decatur, il give me nerve block shots every few months. i didnt and still dont understand why he wanted me to have them so often..i think it just wore me out and drained me more then what was needed.
anyways..the last week i have been seeing a chiropractor, and he hasnt been just popping me (btw he popped a spot in my back that was amazing lol) i have only had 3apts and its killing my body. i was told i would get worst before better. but i didnt think it would bother me this much..i know i havnt had a lot of movement in years, and understand it will take awhile to get all that back to normal. i guess what i wanna know is how was it for everyone when they first started with the chiropractor. i dont have too many people in my life that understands this..hell most of them dont even try to understand but im just needings some reassuring good news to help me stay positive
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Old 01-11-2013, 08:26 PM #29
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Hi Jes, so sorry you got RSD so very young. As you have read from all the posts, it's so different for everyone- and even depends on the chiro. For me physical therapy is what helped me regain use of my limbs and regain mobility. I've had this since '96 and now full body.
Keep us posted how you are doing. loretta
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