Hi Jennelle,
Thank you for sharing your pain and deepest desire-having a child. It's tough having all of this thrown on you so fast. We all were so shocked at each of our diagnosis I'm sure, and then even more when we found out what RSD and then even more when it spread etc.
This is a wonderful group of dear RSDers who really care and want to be there for one another in all of our trials-sharing whatever we know that might help. There are several Moms on here that had children while having RSD. It seems many of them went into remission while pregnant. You could ask the specific question and I know you'll have response or go back to older messages and read about different ones. I'm sure some might PM you and share phone numbers where you could talk in person. (on the phone)
Jennelle, you were injured on the job- you paid for WC insurance. They don't have a right to delay your treatment and compromise a possible remission. ''you get to pick one limb" Have you thought of hiring an attorney that specializes in WC cases. You have a right to life long medical care and compensation. This is a progressive disorder, with no cure. The treatment and medications are expensive. The unknown future of further possible complication is unknown. My daughter is a court reporter dealing with these type of cases dailey, including RSD. I never know any names or details, she never knows who cases turn out because she does pretrial depositions. But I know from my mothers early death and our medical malpractice case, it's good to get a very good attorney(usually from out of town-larger city) where the attorneys don't play golf together. There are others on the forum that are going thru this that know more about it.
I was married 12 years when we settled down to have a family. I was 31 and have never regretted for a minute the miracle of birth. She was breech and had c-section-no family to help-mom had already died at 46 and dad was ill and only lived a year after she was born. I do regret not having more children. 17 years later got RSD. But I'm grateful for the years we had together with good health. Because my daughter and I were so close, this has been extremely hard on her. We played ten nis nearly every day, snow skiied water skiied aerobics, traveled. Everything just came to a screeching halt. This is so hard on the marriage mates and families. I know counseling has really helped me. It's been 1 3 years now and full body.
Hope you get a knowledgeable DR. that you are confident in. My Dr. for the past 5 years has been wonderful. I attribute my emotional health mental stability and physical health to his knowledge. He is a Neurologist, Psychiatrist and Pharmacologist. I'm mobile because of him. He is building a clinic with HBOT and I'm going to try HBOT. My dailey jerks electric jolts, spasms have stopped thru medication and then we gradually went off after 4 years and have only had a couple episodes. Swimming has really helped me keep mobile. We live in Arizona which is better than Oregon for me. Got in RSD in Oregon day after surgery.
Please know we all care what you are going thru. READ READ READ and knowledge is power. It's wonderful you have found us, and you are right everyone on here cares and truly understand what we go thru. Hope you get some answers. Have you had physical therapy massage therapy. I was freed from totally both shoulders being frozen from RSD to full use from therapy and swimming. One hand is crippled, Have you gone thru desensitization? Will be thinking of you. Please let us know how you are. Hugs,loretta