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Old 05-08-2009, 09:35 AM #81
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Aw, Holly, I'm so sorry for your pain. Grandma was truly blessed to have you and I'm certain that she brought her love for you along with her.

Rest your spirit, you did good.
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Old 05-08-2009, 12:36 PM #82
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Blessings to you for all you did for your dear grandmother, Holly.
She's without pain and at peace now.
I am sure she would wish peace for you at this time after all your hard work. My prayers are being sent up for you and for her at this time.
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
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Old 05-08-2009, 03:16 PM #83
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Today started out better. I didn't cry nearly as much. I didn't have to go to the funeral home to discuss arrangements and sign papers (definite plus). The kids, my SIL and I went to the Olive Garden where DH is a manager and ate lunch. Then, reality hit. I came home to let the guy in from the medical equipment place so he could take all the equipment out of here. Her room seems so empty now.

I know it seems so soon, but my 12 year old son wants to move back into that room (it was his before Grandma moved out here last year). Since it doesn't bother him, I'm going to let him go ahead right away. I can't handle walking past that room and having it be empty.

Last night I stood in the doorway and cried. The bed was empty, the oxygen machine was silent, and it was just so sad. I felt like I should go sit in there and watch TV with her. While she was still alert, we watched TV together in there. The last few days, I was in there a lot watching TV and on the laptop while she slept.

If Michael moves back in, there will be life and energy in there again. I think she would want that. I think I need that.
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And wrinkles only go where the smiles have been...

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Old 05-10-2009, 08:35 AM #84
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Holly? How are you doing?


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Old 05-10-2009, 02:17 PM #85
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Quote:
Originally Posted by DAY1 View Post
Holly? How are you doing?


DAY
I don't know. I guess the best word right now is numb.

This weekend is kind of weird. Yesterday was Grandma's birthday and today is Mother's Day - kind of bitter sweet. DH and I went to dinner last night and we toasted Grandma for her birthday while we were out for his birthday (April 26) and Mother's Day. His birthday got kind of lost in the whole hospice thing. Last year, we went out the three of us (DH, me and Grandma) and celebrated Mother's Day and her birthday. Hard to believe so much changed in a year!

I finally made the arrangements for the memorial service. I just couldn't get it together and then it all suddenly fell into place. It will be on Thursday. The funny thing is that was the only day that would work out schedule wise and it turns out that it is my Grandpa's birthday. If he was still alive, he would be 96!! He was 10 years older than Grandma.

I also found the program from Grandpa's memorial service in Grandma's address book when I was calling people and now I know what poem to use on her's. I will use the same one we used for him. Here it is:

Do not stand at my grave and weep
I am not there; I do not sleep.
I am a thousand winds that blow,
I am the diamond glints on snow,
I am the sun on ripened grain,
I am the gentle autumn rain.
When you awaken in the morning's hush
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry,
I am not there; I did not die.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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Old 05-10-2009, 05:16 PM #86
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I like the poem Holly. I also like that the service will be on your grandfathers birthday.


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Old 05-12-2009, 10:05 PM #87
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Quote:
Originally Posted by hollym View Post
I am bringing my Grandma home with hospice on Monday.

Many of you know the story, but for those that don't...

In January, she was dx'd with small cell lung cancer AND she also fell and broke her hip and wrist. We did a trial of chemo for one course and she did not respond well. In fact, she really went downhill. She has been in the hospital for over 30 days since January, then went to a long term acute care hospital for 21 days and has been in skilled nursing for the rest of the time.

She cannot walk and is not even strong enough to sit for very long. She has lost the ability to swallow and now has a PEG tube for enteral feeding. Her electrolytes and hemoglobin continually go out of whack.

We made the decision together a couple weeks ago while meeting with the oncologist to discontinue chemo. She said she doesn't want to live like this. I can't say I blame her. She hates being in the nursing home so it's time to bring her home.

I am terrified about how I'm going to handle this and how my kids will take it, but I really feel like this is the right thing to do.

I am excited in one way to be home. I have been running non-stop for 2-1/2 months between work, kids, the house, and trying to see her in whatever facility at least once a day. Now, we will just be home. Maybe I can even get my house clean again (I can at least hope)!

I don't know how much longer she will be with me, but I really hope this can be a positive experience (as much as that is possible).
Hollym, I hope and pray that you and your grandmother are comforted by the grace of GOD in the time a head. We are comanded to honor our motheer and father, that our days will be long. I pray that GODS blessing will be abondant toward you for honoring your grandmother.

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Old 05-14-2009, 05:01 PM #88
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Hey Holly,

I was thinking of you today. I just wanted to check on you and see how the service went.


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Old 05-14-2009, 05:36 PM #89
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Thinking of you Holly.
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Old 05-15-2009, 08:51 AM #90
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Thanks, guys. It went well. I actually had the nerve to get up and do a eulogy. Everyone was quite impressed, so I guess I did a good job. I do think it was a pretty nice eulogy that only scratches the surface of Grandma's amazing life. It took me days of writing and editing and just walking away from the computer before I got to the final version. I didn't even cry and sob through it. My voice only cracked a couple of times.

Honestly, I think I'm pretty numb and kind of in a weird in between state right now. It doesn't seem real. I felt like I should be crying, but I couldn't. I cried for 3 days straight last week and now I just cry at random times. Maybe I cried my limit of tears for the month of May? I do feel a little guilty for not being more emotional, though.

After the service, we had a little dinner in the church basement. We had sandwich ring from a local deli, veggies, soup, salad and breadsticks (from Olive Garden) and everyone seemed to enjoy that. I had a much needed glass of wine.

One of the neatest things is that a local board buddy from the other MS board came to the service. We have stayed good friends, but only see each other a few times a year and it was so nice to see her again.

Now I feel kind of tired and drained and have to get on with the business of wrapping up Grandma's affairs but I really can't seem to feel motivated to do that. It's so sad. When she was still here, I used to sit in her room and pay her bills with her and now it just seems so empty to write the checks with both of our names on them.

Sometimes it just doesn't feel right that "life goes on".
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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