Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 10-26-2012, 09:42 PM #1
Theta Z's Avatar
Theta Z Theta Z is offline
Member
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Theta Z Theta Z is offline
Member
Theta Z's Avatar
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Default Doing much better, thanks to meditation, yoga, Aricept, & lil doggieswalking ...

... and in general, feeling "I'm back", and that I "have my life back" ... Alleluia. Wow. It's so good to be back to feeling again like myself again

I continue to be doing very well with the Aricept (donzepil) over these 2 months now. My cognitive functioning is so improved; cognitive executive functioning is *majorly* improved.

I continue meditation 2 x daily, yoga stretches, meet w/ a group meditation weekly -- which helps greatly with the practice. I use lavender epsom salts in my daily bath, 1-2 x daily, which is both relaxing for me (cheap on sale @ Walgreens) plus helps with the physical aches&pains. (It's still 'hot' Down Here on the Gulf Coast, so 'sweaty' still happens when out-&-about during the day, thus I often bathe before bedtime again, to relax & refresh. )

I'm 4yrs out from the rear-ended MVC which majorly altered my life 2008. [ Note: I had one 'good year' (2011) in these post-injured 4 years.] I didn't know it at the time ... I 'overdid' it last year 2011 when I was doing well --- in the effort to do whatever I could do/was newly-again-capable-to-do . I truly thought that I was 'resting' appropriately to 'balance' the increased activity, the 'busyness' of requirements of ordinary everyday life & 'have a life' again, Alleuia.

Yet nonetheless proved 'too much' for me it seems now in retrospect; I could not sustain it. Jan. 2012 I was rendered 'dysfunctional' yet again. "Stop. Do not cross 'Go' !!" --- for 9 months. 9 months of 'quiet rest', social isolation, no activity outdoors ... because I was incapable of anything more. (No fun, for certain.) While I may perhaps be 'fortunate' that I live alone, it was 'no picnic' living with only my own mind, as I've posted previously on here. ) Thus the move to more intensive meditation, to increase my capability to cope/ to deal with 'it all', as life now is.

So I'm walking lil doggies, housesitting-petsitting, & a little personal chef cookery for elders each week. (Thai & Indonesian is my specialty; & I'll cook anything ... now that "Theta CAN cook" again, yes!)

My 'enduring lamaise' is a daily count-on-it severe fatigue --- w/or w/o any activity or exertion --- can come over me by 9-10 am morning/before noon, and especially by 1pm. It's like "I just cannot keep my eyes open another second", "I've just gotta-lie-down-&-nap/sleep" --- yet no way if I attempt to do so am I actually able to 'nap'. I was helped last year by rx'd Provigil/Nuvigil (modafinil) --- but that doesn't feel in order for now. So, I muddle on through my days, glad to be as well as I am.

"The Challenge" remains of course to be always mindful of my capacities of the moment, the day, & 'to do' what it is that I set-out to do, i.e. meet my commitments in such a way that I do not over-exhaust my self and 'blow it' & my by-now 'admitted limitations'. I am in no way capable or competent to be doing what&how I was prior to MVC 4 yrs ago. I'm older than most posting on here; and as Mark has said, we of the over-age-40+ generation do not as 'readily' heal of brain injury to bounce-back-to-our-former-selves as the younger-aged-injured. Nonetheless, do not give up. You, like I, can & will be 'better' again. (And mind ya: I've *not* been all-patient-peaceful-faithful-enduring-hopeful all along the way --- no way! )

Just my update to present here, NT friends.

Best of wellbeing to all here,

Theta
__________________
_____________________________
.


50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it."
1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm!
.

__________________________________________________ _________
Each and every day I am better and better. I affirm and give thanks that it is so. // 2014-This was still true for me last year, I truly felt this a year ago. Unfortunately it holds no meaning for me now. Odd, it was the Theta mantra for years. Change change change.

Last edited by Theta Z; 10-26-2012 at 10:22 PM.
Theta Z is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
andi (10-30-2012), andromeda (10-27-2012), ChrisC1970 (10-30-2012), lamblite (10-12-2013), lsamson (10-11-2013), nightnurse30 (10-27-2012), pcslife (10-28-2012)

advertisement
Old 10-27-2012, 01:06 AM #2
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
Default I've been enjoying your posts

Hi Theta,

Thanks for sharing your journey. I have been enjoying reading your posts. You have had so much to deal with and I'm thrilled for you that life is getting better and better. It sounds like you have worked hard and have had a determination to find the gifts in all of this

Your posts have particularly spoken to me (and informed me!) as I just went to a mindfulness class last week, based on Jon Kabat-Zinn's MBSM. I think there is a message in this for me

I come here as a caretaker (mom) of an adolescent with PCS.

All the best,

pretdou
pretdou is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Theta Z (10-27-2012)
Old 10-27-2012, 04:24 AM #3
sospan sospan is offline
Member
 
Join Date: Jun 2012
Location: Wales, UK
Posts: 284
10 yr Member
sospan sospan is offline
Member
 
Join Date: Jun 2012
Location: Wales, UK
Posts: 284
10 yr Member
Default

Theta, Glad you are back on the road to recovery and are happy.

Reading between the lines of your post, you seem to have a well sorted routine with daily and weekly activities, with points during the day to nap - I guess the ordered plan has helped as well ?
__________________
January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
sospan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Theta Z (10-27-2012)
Old 10-27-2012, 03:23 PM #4
Theta Z's Avatar
Theta Z Theta Z is offline
Member
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Theta Z Theta Z is offline
Member
Theta Z's Avatar
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Default Much appreciation, pretdou.

Quote:
Originally Posted by pretdou View Post
Hi Theta,

Thanks for sharing your journey. I have been enjoying reading your posts. You have had so much to deal with and I'm thrilled for you that life is getting better and better. It sounds like you have worked hard and have had a determination to find the gifts in all of this

Your posts have particularly spoken to me (and informed me!) as I just went to a mindfulness class last week, based on Jon Kabat-Zinn's MBSM. I think there is a message in this for me

I come here as a caretaker (mom) of an adolescent with PCS.

All the best,

pretdou
Hello, pretdou,

I thank you for your acknowledgment here. And I am so glad that you have connected with Mindfulness Based Stress Reduction there in your Canada location. As you are a mom, of a high-achieving young teenaged daughter suffering 'a crash' relapse of PCS, it is clear in your postings that you already bring a 'centered' approach to your family & your daughter's best options to 'work with what simply is, now'. As you said, any "futuristic thinking" can be so troublesome.

I've been following your posts as well. Sounds like you and Mark are well on the track of best options for your daughter's recovery. Your own unselfcentered compassion shines through all, pretdou. Clearly your daughter is in your good care management and guidance. I hope that she may soon come to accumulate better days in a row, to grow better and better.

Best to you & your daughter,
Theta
Theta Z is offline   Reply With QuoteReply With Quote
Old 10-27-2012, 04:16 PM #5
Theta Z's Avatar
Theta Z Theta Z is offline
Member
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Theta Z Theta Z is offline
Member
Theta Z's Avatar
 
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
10 yr Member
Default Your inquiry, re: well sorted routine and ordered plan

Quote:
Originally Posted by sospan View Post
Theta, Glad you are back on the road to recovery and are happy.

Reading between the lines of your post, you seem to have a well sorted routine with daily and weekly activities, with points during the day to nap - I guess the ordered plan has helped as well ?
Thank you sospan for your acknowledgment here. I thank you also for giving me cause to joyfully laugh aloud at myself this morning upon reading your post ... . Laugh because my days presently seem to me --- while not chaotic, frenzied, nor all-over-the-place --- yet in no way a well-ordered plan or routine. A weekly itinerary doesn't work for me personally, as I 'simply am, now' at this stage/age/capability in my life. I can't make my capacities to fit-a-template as it were. I'm still learning to 'go with the flow', and the inevitable ebbing. "Rest when needed", or even better "before needed", seems to be still key for me.

The 'balancing act' daily seems likened to a seesaw.
Theta Z is offline   Reply With QuoteReply With Quote
Old 10-27-2012, 04:28 PM #6
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
Default

Theta,

Thank you for your lovely words of kindness and encouragement. The self-pity can definitely rear it's ugly head at times!

There is such a huge, huge learning curve to all of this and we resist a lot of what we need to learn, eh? Yes," being with what simply is, in the moment".

Reading about your "crash" after a year of doing better definitely turned a light on for me. This is a marathon, a life-long marathon for my daughter with her history.

Yes MBSR is cropping up everywhere in my life these days. I am SO greatful to learn about your practice. It has been really inspiring. I was "sitting" most days last winter, doing something similar to MBSR, but got "unseated" when my daughter had PCS

And the details of how you have organized your schedule and rest as mentioned in the post above are fantastic. It is so confusing to sort out what is happening and so many of us must do it on our own. This site, with folks like you sharing what they have learned, has been the best resource I have had by far and away!

I will post again as we move along. Again thank you for the lovely words. I love your courage
pretdou is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Theta Z (10-28-2012)
Old 10-27-2012, 04:39 PM #7
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
pretdou pretdou is offline
Junior Member
 
Join Date: May 2012
Posts: 27
10 yr Member
Default

Well, I wrote the part about details of schedule and rest before your response so it's sort of funny how that all looks!

But what you have to say about how it all actually does work for you is actually very helpful!
pretdou is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Theta Z (10-28-2012)
Old 10-27-2012, 05:43 PM #8
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

Can anyone explain the to me the difference between MBSR and apathy?

MBSR sounds like it is the opposite of CBT (Cognitive Behavioral Therapy).

Just curious since Jon Kabat-Zinn defines it as a moment-to-moment non-judgmental awareness. People of many religious convictions are taught to take every thought captive.

I have gone through periods of apathy and did not find them beneficial.

Am I missing something?
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 10-27-2012, 06:33 PM #9
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
Default

If you dont have something supportive or thoughtful to say when someone has found a therapy they enjoy and find helpful....then maybe you should take your thoughts and keep them captive.
__________________
Suffered a TBI with PCS on April 25th 2011 from multiple blows to the head from falling, unconscious for 12 hours with no memory of event. Hit the back of my head, and above right eye. MRI and CT negative. Symptoms included constant headaches (migraine, pressure, tension, icepicks), dizziness, tinnitus, visual changes, photophobia, fatigue, "spacing out", word finding difficulties, depression, and emotional lability.
Began Healing in November 2011 after starting acupuncture and Healing Touch (a nurturing energy therapy that promotes relaxation and pain relief). I went back to work in February 2012. Ive been symptom free since July 2012. Very happy, positive, energetic and working out every day, doing yoga, and living a normal life again!
I also began taking Healing Touch classes in November 2011 and completed 5 Levels of Healing Touch Certificate Program that included a 1 year mentorship to become a Healing Touch International Practitioner in June 2013. I am so pleased to offer this wonderful healing therapy to my patients, friends, and clients.
nightnurse30 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lightrail11 (10-11-2013), Theta Z (10-27-2012)
Old 10-27-2012, 07:46 PM #10
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

I am asking a valid question. MBSR is not defined any further than my simple impression as explained in my question. Is there an added dimension beyond the web site explanation? Do you need to take the course to understand the difference.

CBT is taking the thought and redirecting it to a positive thought. MBSR talks of taking the thought and doing nothing with it. PTSD results from stressful thoughts that have no system of release. In my experience, denying the meaning of a thought may allow temporary stress reduction but the long term affects of such a behavior has ended up being stressful as the issue is allowed to continue to build without reaction.

btw, "Jon Kabat-Zinn has said that his program is not spiritually based, and is therefore open to everyone no matter what life circumstances they are in. "
Maybe he is just unaware of the spiritual implications of his protocol. But, that is not my question here.

There appears to be a missing dimension somewhere.

Or, is the difference something that is tied to right brain vs left brain thought processes. Although right brain/left brain issues are not discussed, there appears to be some research data that might indicate a tipping toward benefiting the right brained mind.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Aricept for ADD or ADHD Vowel Lady Attention Deficit Disorder 2 11-30-2012 05:08 PM
Aricept (donzepil) seems to be helping me with cognitive executive functioning. Theta Z Traumatic Brain Injury and Post Concussion Syndrome 11 10-23-2012 12:39 PM
Aricept - New Med melek Traumatic Brain Injury and Post Concussion Syndrome 11 05-20-2012 04:00 AM
Aricept, Provigil and TBI July63 Traumatic Brain Injury and Post Concussion Syndrome 1 10-26-2010 09:50 PM
Mom is taking Aricept AZjanie Caregivers Support 1 12-24-2009 12:42 PM


All times are GMT -5. The time now is 09:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.