Hi Lori and Gaye

Maybe it is the season for melt downs -- I have had at least 3 this year - worse than I have ever been previously. (I am wondering if I need anti depressants again.) It feels like the tears are just waiting all the time and I know that if I keep going as I am I will embarass myself in public.

Lynlee

Sissy - did you see that ages ago I wondered if you would be ok on a tandem bike - or did you think I had gone loopy??

Lynlee

Lori, I do feel better today, thanks.
I couldn't get back here until now, due to my melt down turning into a big phsycotic blow-up! Started screaming in hysterics...can't remember what words I was screaming, ran into another room and sobed and sobed! I lost it competely and packed my bags left the house at night. I normally, even before the pcs, have night blindness and certainly can't drive a carwith my pcs, so this was a dumb but desperate thing to do! . This was a big deal...went down the road a couple miles realized I could not put anyone elses life in danger, so went and visited my Son at work until late night, he is only about 3 miles away from where I live. Later called hubby and told him I would be back home.

What a night. I just wanted peace. Had cried all day long over everything, thought washing machine was broken..full of water so would not add more. I did not see the water...big time confused! Got upset over some shelves we bought and hubby was complaining about them. I asked him not to put them up right then...told him I was upset and losing it...he insisted...wrong thing to do...it was the last straw....that was what caused all the screaming and big big overload.

Today we are OK, each walking on eggs. He took me to the Mall along with my handicap scooter. We ate at a resturante there together, he left me and went off down the street to some other stores. I was alone...totally on my own with no keeper and no one rushing me or telling me what to do. Oh what a glorious day. I actually got out of the house and saw people and things and felt so much more normal. Bought new glasses, a pair pj's & a sweater and they were on sale! Glasses were the type frames I wanted and old lenes were scratched badly.

The greatest thing of all, was My hubby was sitting beside a man on a bench in the mall. The man had brain damage when he was in his twenties and is now in fifties. Still suffers with pcs type issues...he understood my situation. I actually got to talk in person with someone that said "I know and I understand what you are going through"! WOW, what a moment what a wonderful thing to get to talk to this man. I left the Mall thinking that there is a chance that I will make it...missing some of my abilities, but still I will make it. I am not going to lose my mind...just lost some of my brain!

Also last night my Son said hubby cares but son doesn't think hubby can understand what is wrong. Says his daddy is worried about me. Sure could have fooled me...he comes across like he is always mad at me. so I have to start finding a way for us communicate?

Lucy, I am sorry you and Lori are having melt downs too! I am very sure I need some kind of pill to chill me out. Due to my pain levels and pain flares, inability to walk very far or get about very well, I have been on antidepressants off and on for years. Guess it is time to get back on again. Sometimes I wish I could lay down like "Rip Van Winkle" and fall asleep and wake up when it is all over. Ha, at my age I don't have that much time! LOL Goodness. I just laughed...hmmmmm that felt good!

hi to everyone

Sorry it has taken me a little while to check out this site. I am so grateful to everyone for their responses. I will make a copy of what has been said and share this information with my client. I am to encourage him to access this forum via the internet at the library but even if that isn't possible I feel that it will be invaluable for him to learn there are others out there experiencing similar things.

On a personal note it is so inspiring to read about how each of your are dealing with difficulties and the support that is available via this site. Thanks so much for extending that support to me as a visitor. I hope to let you know how we get on

Once again many thanks

Kate

Hi Kate, thanks for taking such an interest and for going out of the way to help your client. I think it is great that you are trying to get him connected with other people with similar experiences. I can't even describe how much this forum has helped me and hope that we can be of help to him.

Hi Lynlee, I wrote a reply earlier, but I lost it so I will try again. Thank you so much for thinking about me and I hope you enjoyed your vacation time despite the melt-downs. I get those too sometimes - the "poor little me" moments and I try to think of other people who have worse problems and that helps some of the time. I appreciate your suggestion about the tandem bike and a friend offered to take me on a ride last fall, but tandems are much harder to control than regular bikes and the person in the back is at the mercy of the front rider. I guess I don't trust others enough to keep the balance and don't want to fall over and bump my head. I read in the tbi guide that swimming in a warm water pool can help with head and neck pain and was wondering if you have ever tried that? I thought I might try, but would like to hear from others if it really helps or makes things worse.

Hi Kate Hardy,
Your client is lucky to have found a therapist who is willing to go the extra mile and research PCS! My son and I went to a neuro psychologist in Brookline MA when he was healing for months with PCS and those appts. gave us so much information and peace of mind. Keeping the stress level low and having some peace of mind helps so much in the healing stages of PCS. this site is extremely unique and packed with alot of intelligent knowledgable PCS veterans. Good Luck with your case!
Nancy

Hi Sissy, Have you thought about getting a bike stand for your bike and setting it up in the garage or some safe controlled environment where you can practice riding.

I would use Kaizen in this application of re training [ baby steps will get you to the bus]

Take Care Jeffn

Thanks Jeff, yes I have been doing indoor cycling on and off since Nov. I started with 15 min. and slowly worked my way up to 30 min., but pushed a bit hard last week and had to back off. I use a heartrate monitor and need to keep my heartrate pretty low or I will get dizzy. I was inspired by Barry Willer, but am not sure that this is doing much. At least I am doing some exercising. Take care.