hugs for you kay...thursday cna't come soon enough!
bizi

I get fatigued when I drive long distances also. What keeps me on my toes is my police radio scanners,and CB radio on the truckers channel. With all the talking that I hear on these radios,it keeps me informed. I hardly ever listen to FM music in my car. I've just got those dang communication radios on. It also makes me feel better that no one is coming after me.

I don't know how people can travel all the time for a business. Truck drivers travel all the time. I don't know how they do it. BF

Thanks guys

Mari, I could try combining public transport and a cab. I can take a train from my town to Boston (and figure out what stop to get off) and take a cab... That's a good idea! I forgot about the train!!!

Steve, I keep the radio on to keep myself alert. I think my driving issues are related to the cognitive problems I have from MS. I've been a pretty scary driver around town the last 2 days, too. I got lost going to physical therapy today even though it's right up the road and I've been there 3 times.

Bizi, You're right, I need to get tomorrow's appointment out of the way!!!
I saw my PCP yesterday to have a follow up appointment (follow up to what, I can't remember) and to discuss all my recent medical crap....
We discussed my abnormal pap-smear, and constant bleeding...
Because having a baby is almost definitely out of the question anyways, he thinks it may be best to have a historectomy....
Intellectually I know he's right, but of course I have mixed feelings about it.
-Estrogen replacement to control the bleeding is not a long term solution and may make me manic.
-I don't know what severity the "pre-cancerous" lesions are, but either way it will require lots of follow-up care and/or procedures.
-I really don't need to deal with 2 more on-going problems that could effect my health.
My PCP is going to speak to the gynecologist, who is right down the hall from him. I'll talk with him some more after I get my pathology results tomorrow.
I still haven't told my husband about the hysterectomy possibility. I think he still wants to hold onto the idea of having children.

I just have lots of concerns.
Not only the appointment tomorrow, but my health is deteriorating. My cognitive deficits are becoming much more challenging and noticeable, and my gait and balance are worse.
I have anxiety, but I'd say I'm holding it together. Yesterday and today I've been sad, but no tears and really no pity party to speak of (yet).

Dear Kay,

I understand that you think ahead and that is good.

But you don't have to plan a hysterectomy just yet. The gyn has to talk to you first. You might have several options that do not interfere with mood (or that might help mood).
I hope that I am saying this in hopes that being helpful -- if I am not being helpful, then ignore me. ()

I hope that all goes well for you tomorrow.

I also wish you luck with your trip to the city.


M.

thank you for sharing.....
They don't know why you are bleeding but are talking about a hysterectomy? Do your gums bleed? any on the other end? have you had a stool sample checked for ocult blood? if you cut yourself do you stop bleeding right away or with lots of pressure?
I am hoping that you have some answers tomorrow.
good luck with the transportation issues.
bizi

Dear Kay,
Thinking about you.
I hope that you are ok.
'Sending hugs.
M.

Wow Kay

I sure feel bad for missing all this that has gone on this week. I'm hoping
things went well with the gyno yesterfday.

Donna

Again, thank you...

Donna, thank you!

Mari, you are being helpful as always! I'm definitely not rushing into any surgery. My PCP wasn't rolling me into the operating room yet either. His point was that the MS will always be there- we can't change that, just treat the symptoms. But the lady problems can be fixed if they're ongoing. He's concerned about the bleeding, and the impact of both conditions on my health and well-being (so am I). I'm sorry if it seemed like surgery would be an immediate thing, but it may be an option.

Bizi, I don't have any other bleeding issues. I've always had heavy periods and I'm always slightly anemic. They do fecal occult blood tests with the pap at my gyn's, and it was negative. I do have slight bleeding from hemmoroids on occasion tho. I'm a slow bleeder- when I cut myself it takes a minute or 2 before I start bleeding.

Thankfully, my pathology results showed low-grade abnormal cells!

I also had an ultrasound that showed my uterine wall was extremely thin. The gyn thinks that since I was having heavy and abnormally long periods to begin with, my uterine wall was already thin and irritated- then I had a copper iud put in that had to be pulled after 6 months because of extremely heavy and long bleeding (the mini-pill didn't help)- now I have implanon (progesterone-only implant in my arm) and I guess that can thin the uterine wall, too. She thinks that because the uterine wall has been so thin, the bleeding is from irritation.
So, I'm going to take estrogen for 1 month to try to build up the uterine wall. I don't know what type or dose because the pharmacy had to order it. I can pick it up today. She said estrogen shouldn't worsen MH conditions, but progesterone can. I guess we'll find out.

I'm having a repeat pap smear and another ultrasound in March. I didn't mention future options to the gyn at all. I want to see how my follow-up pap results come back. If she starts talking about procedures then....
I also want to give them more time to control my bleeding. Up until now, they haven't done much to help.
I talked to my husband Wednesday night (before I got the results) about my concerns, not having children, etc. He said, "It doesn't matter. I'm just concerned about your health and comfort... all that matters is us" Wow. Sometimes he can be wonderful!

In other news... I'm going to taper off my lyrica, while starting back on neurontin. I'm glad the doc went for it. I'm going to wait until Monday to do that and begin taking the estrogen because I have IV steroids today and don't want to rock the boat too much. I'm also concerned about the lyrica-->neurontin over the weekend, when I can't reach my neuro if there are issues.
My husband's company Christmas party is tonight (we are taking a cab both ways). I feel like I have a lot to do before that and I know I'll need a nap. We had a great time last year, and hope for a repeat performance.

Thank you all so much for your support! You guys are just wonderful!
Kay

wow I am so glad your husband said that....it was simply beautiful.
bobby

Dear Kay,
Thank goodness you got a good pathology report.
Now you can check that off the worry list.

I'm glad that your husband is being a sweetie about your medical.

I hope that you enjoyed the party.

M.