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Old 02-14-2014, 09:13 PM #18
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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Hi Porkette, I am back again.
and again looking for your help.--- I hope all is well with you.

Since I last posted, my neuro doctor has deceided to take me back to the hospital for a 72 hour long Videomonitored EEG.
And he is also refering me to a epilepsiologist ( right spelled?)
But I am not so sure this is simple partial seizures. When I wake up suddenly from a deep sleep, I feel a verry intense vibratory feeling, almost like electric current, down my spine from the base of the skull (or it feels like from the line drawn between each ear)
right down to the end of my spine at the genitalia area, then it goes down my legs, it almost feels mostly in right leg all the time. This is acompanied by a feeling of spreading warmth. Then after a while of this, I feel the heavyness of legs, as in feeling of inner numbness. The episodes last for a long time, up to 1 hour. Sometimes I just feel so tired and drowsy, I go back to sleep. Sometimes I get very frightened, and get out of bed. When I get up lately, I feel very dizzy.
Since I have neuropathy, I am wondering if this whole thing is the neuropathy. I also had a spinal tap, it was negative for MS or any CNS inflamation.
Since I have herniated C 6-7 disc, I am wondering if it could be from that, because I think the disc was impinging on the cord posterly. Last time I checked with the spine doc, (July last year,)
I have now made apt with him again.

I will be going for this 72 hour video monitored EEG on Monday. I asked my doc re holding the antiseizur med Lyrica ( which I take for neuropathy pain) he said no. He said because I am not taking this med for seizure prevention. So I do not know. he is not a specialist on this. Perhaps I should call the other doc to ask re holding it. Perhaps I could just hold a couple of doses.
I will try to stay up the night before.

Any other precautions I should know?

All the best
Synnove
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