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Old 02-15-2014, 09:45 PM #22
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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Porkette
Yes, I too write a journal, sort of. I have to keep a journal of all the different symptoms that I have from day to day. When I first told the neurologist about theese night episodes, he asked me to take notes of it, and I have.
You mentioned you had had the myoclonic seizures at night.
I have seen a pattern in my episodes as far as time goes. They usually happen around 0100 at night, and the often again at around 0400. Then sometimes it comes as I wake up in the morning.
This is the strangest thing. When I finally get to see this eleptiologist, I hope to have a good brain scan. ( I have already had a lot, but not the SPECT scan.
I can not see why it is that I should have some sort of epilepsy, that nothing shows up during the day.
I am also wondering if it has something to do with effects from Lyrica.
But hopefully I can have it clarified.
My niece that has Epilepsy, she has done very well, has 4 kids, and is active working. I think she gets her drivers licence ok ed after certain time witout seizures. I do not know what medisine she is on.
All the best
Synnove
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