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Old 06-08-2010, 11:21 PM #1
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Default Fatigue?

I feel like I'm dying tonight.

I've been getting fatigue really bad since this current flare started. The fatigue feels like it's getting worse.

Is there anything that can treat the fatigue? How do they treat it? Do they just give you uppers or something?

The last time I felt this bad was when I was recovering from mononucleosis. Back then, I'd have to sleep 6 to 8hrs after just getting up to go to the bathroom. At least with this fatigue I can still get around and not have to sleep it off, but I feel like crap.

I mentioned the fatigue to my neuro when I saw him last friday, but he didnt offer anything. The fatigue had let up for about a week or so and hadnt hit me again til the next day after seeing the neuro.

I think it's related to the numbness that I've been having with this flare. The numbness had gone away for a few weeks after I had 3 days of IVSM last month, but now the numbness has returned and brought the fatigue monster with it. (I didnt have the fatigue until after I had the IVSM)

I feel achy like you would when you get the flu. (the real flu, not just a cold) I dont have symptoms of a cold or flu, but I feel like utter crap. My body is so tired.

Is there anything that I should ask my neuro for to deal with the fatigue???
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Old 06-09-2010, 12:29 AM #2
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I take Nuvigil to keep me going. The fatigue is bad but I deal with it. I don't get much done past my workday but I manage 40+ hours a week. If I didn't have to work I wouldn't take the Nuvigil but take naps instead during the day because it's expensive to take these meds.
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Old 06-09-2010, 12:56 AM #3
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I dont work. (not skilled, havent been able to find a job since 2002...which was before I got diagnosed with MS. I seem to get bad MS flares anytime I even think of going back to school)

I guess I could get away with napping, but if I slept as much as I want to sleep, I'd only wake up to go potty and eat. As appealing as that sounds, I dont want to spend my life sleeping.

I did just have about a 40 minute nap in my computer chair...which is not the most comfy place for a nap. My neck really hurts now. My left arm is more numb than it was when I fell asleep. (wonder if that's related to the neck pain)

I'm just not used to feeling this tired and wiped out. I'm starting to wonder if there's something else wrong with me that's causing the fatigue. Not sure what that could be. Tempted to go to my regular doctor and have him check me over for an infection or something. (or go to my dentist and see if she can find anything wrong in my mouth that could be causing a hidden infection)

I guess I should be happy that the fatigue actually lets me sleep sometimes. Since I've had problems with insomnia for a long time. It's weird to be insomniac for a few weeks, and then feel like someone is secretly slipping me a mickey in my bottled water for several weeks.
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Old 06-09-2010, 10:13 AM #4
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Maybe get checked out or just enjoy the ability to rest while you have it? When we take vacations I stop the Nuvigil and just lay around all week for the most part other than going to eat or maybe one workout a day.

One of the best things for insomnia seems to be exercise early in the day but avoid it near bedtime since that stimulates the mind.
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Old 06-09-2010, 11:07 AM #5
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Fatigue is one sx I have quite often. It can sneak up on me out of nowhere with no warning, too. I feel like I've just climbed a thousand stairs non-stop. My legs feel like they each weigh 100 pounds. I can't even raise my arms long enough to brush my hair. It's debilitating. When it hits I just give into it and rest. My body is telling me it's had enough.
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Old 06-09-2010, 01:05 PM #6
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The fatigue is letting me sleep, which helps my brain somewhat, but when I wake up after 10hrs of sleep and my body feels like I've been up all night, it's not all that helpful.

I just got up about an hour ago. My back feels really sore, I still feel all achy like I've got the flu or something, and my neck is killing me. I'm supposed to go to physical therapy this afternoon, but I'm considering cancelling that. I just dont think I have the energy to do it. I definately wont have the energy to drive myself home afterwards.

My right arm and hand are also becoming numb, something I just noticed. This is just getting worse and worse. This whole-body numbness is starting to scare me. Especially since I've had some mobility problems from my legs being numb at the start of this flare.

Just called my neuro...he's "out of the office" until June 21st. ARRGGHHH!!!
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Old 06-09-2010, 05:25 PM #7
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Erin, I take Provigil when the fatigue is really bad and I need to stay awake and alert. Otherwise I allow myself to take a nap. I don't wake up feeling "rested" but, it's better than it was before the nap. Fatigue is horrible when you know you have a limited amount of energy and you need to make the decision of what you will and will not be able to do that day

I had the strangest feelings in my hands the other day. Both hands fell asleep and it felt like pins and needles sticking into me while at the same time they were a bit numb and I couldn't use them. I was going to call my neuro if it continued but it only happened that one day.

Does your neuro having anyone covering for him/her????????? If not perhaps seeing your GP may help.

I hope things get better for you, Erin.

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Old 06-09-2010, 07:20 PM #8
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The 500mcg (8,333% rda) of b12 I take every day gives a little zip. I have liquid B I havent tried yet but the girl that showed it to me was speeding with a smile. Says 20,000% rda.
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Old 06-09-2010, 08:14 PM #9
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One of the partners at the neuro's office called me back. He told me what meds I could take (if my neuro were in town) for the fatigue. Said he couldnt Rx it to me since he wasnt my neuro and he hadnt seen me before. He did answer a few of my other questions (non-medication questions) at least.

I'm not sure I want to take these meds...one of the ones he mentioned was prozac. I'm not a big fan of taking antidepressants (bad experience with one that I was taking for insomnia)

He did tell me that I'm probably still in the flare (regular neuro told me that last week too) and that the fatigue might go away when the flare goes away. I'm hoping the numbness goes away, because if it doesnt, I may change my answer on Sally's question in the Stumble Inn about whether or not I'm happy.
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Old 06-09-2010, 11:13 PM #10
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Erin, I take Ritalin. I guess street name would be an 'upper'!!!! It helps some but I still have days that my DH just knows not to expect anything from me. The fatigue was what got me my disability. The person there that gives info to the judge, can't remember what his title is, told the judge that I would be calling in sick at an average of 2 days every 6 weeks. Fatigue gives no warning, the type of nights sleep you have the night before makes no difference. One thing that has helped me though was a sleep study which showed I have sleep apnea. I wear a CPAP and it really does affect my sleep and rest.
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