Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-03-2011, 01:03 PM #21
AynaDee's Avatar
AynaDee AynaDee is offline
Member
 
Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
AynaDee AynaDee is offline
Member
AynaDee's Avatar
 
Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
Default

Quote:
Originally Posted by Gabriella7 View Post
Ayna, I feel better now that I know some financial help is available if my 2 insurances don't cover total cost. My last neuro wanted me on IVIG but the insurance would not cover the cost since it is not actually FDA approved for MS. I believe the cost was going to be $10,000 a day to treat. Only a rich person could pay for that.

I found an article on the NMSS site and it is approved by FDA for MS so I am relieved for that information. I've had MS for well over 30 years but it was not diagnosed until I was already in the progressive/relapsing stage. The new neuro calls it SPMS but I don't really care what it is called, just make me better!

Are you heat sensitive? I live in the deep south so the summers are murder and I basically stay in a room with AC set at 68.

Blessings,
Gabriella

I am very glad to hear that that takes a weight off your chest.
It's crazy that they price our medicine the way they do, I honestly feel my neurologist wouldn't even be able to afford the costs of this disease. It's whack.

Heat sensitive-absolutely. It sucks very bad too. I live in IL and our summers are so hot and HUMID, it kills me. So in the summer time I can't go outside, as soon as I do the symptoms start and only continue to grow. and it usually ends up having to have a 5 day IVSM treatment followed with 3 week prednisone taper. I hate it because I am trapped inside for a whole season and don't get to partake in the fun summer activities. Another thing for MS to rob me of.
AynaDee is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Acthar Gel Anyone? jowen214 Multiple Sclerosis 10 10-30-2010 03:34 PM


All times are GMT -5. The time now is 08:24 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.