[rose_thorn98]

My turn to vent and to have a breakdown. Tomorrow will be 4 months since this all started and changed my life. I feel so sad and hopeless. No diagnosis...and in so much pain. My Lyrica seems to work a bit, but last week it stopped working as well, so in increased the dosage. But now, after only a few days, its again not working as well. I've been referred to a pain Dr. but of course can't get in for 2 months.

I just want my old body back. Its so hard to live like this, in pain all the time. Its so hard to be a good Mom to my little boy, and to work and to be normal. The Lyrica is making me so foggy and forgetful all the time. I just want to be my old self, minus the drug fog. Today I couldn't remember what Christmas presents I had gotten people. Sorry to be a downer, but I just have some days when I can't stay positive.

[drswami]

I'm sorry to hear your feeling bad rose. i've had mine for 18 months. the first 9 months were the worst as i had no effective painkillers, and couldn't sleep. and going without sleep just made everything awful. I now have lyrica, which helps me sleep, but i still have pain every day. some days are better than others.

although it's hard at times, i think its very important to stay positive as it will make you feel better. good luck.

[malawigirl08]

Rose I can identify with every word but hang in there it will get better.
The drug fog will ease off and in the meantime make lists.
The pain doc is the best so good luck with that. In the meantime Epsom salts have really helped.
I still havent mastered the kids yet, I feel so guilty when I am catching up with sleep at weekends - it just isnt fair! Just make sure you make the most of good days and your little boy will adapt to any changes in your life.(at least that is what I keep telling myself)
This support group has been a lifeline for me so please come on and vent when you need to, we are all in this together.
Hope tomorrow is a better day, just take it a day at a time

[dahlek]

It's a crappy situation to be in for sure, but YOU have IT, as do all others here. THINK/WORK on other things! Keep your mind [no matter how muzzy?] working on something constructive....such as getting on w/life or learning more & reading medical papers that can turn any mind to mush!
What ELSE are ya gonna do? Nothing destructive I hope, I mean...Thot about it very briefly, myself, BUT I figured then someone would have to go THRU ALL MY STUFF Some of it precious and throw it out? NO Way!
I too, want my body back! But What I've got to work with is what I MUST WORK with? Soo, I'm working with it. It's not fast or fun or anything... just the ability to do 'little' things that I couldn't at my onset, are always a treat!
Any new simple thing I can DO is a special worthy of a ME holiday! By 'holiday'? I mean a chocolate treat, or some Ice Cream on a cone. Things I have to deserve and get treated for! Yep. Sorta like a dog. But it works.
Don't wallow, WORK, LEARN and beat this stuff!
I speak as one who seems to keep starting over. Circumstances aren't always kind to us, but we must be both kind and firm to ourselves!
Don't know about you, but what I have I sure didn't ask for, nor could it have been predicted. IT happened! I'm learning to live with 'IT', & hope I can help you to learn as well.
!!!!!!!!!!!!'s - j

[MarriedtoRSD]

Everyone has those days. My husband especially, but even me, find myself often standing in the shower crying. Id love to have our life back. But I realize that its never going to be the same. That doesnt mean we've given up hope. We hope and pray it will get better. We have faith that it will. We understand that things wont be the same and thats ok. But yea, sometimes when Im feeling frustrated and Im down, I take me a nice long hot shower, have my cry, by the time Im out of the shower and dressed again I feel better, I can put on a smile and make it through the day.

Good luck sweetie, Im praying for ya!

[rose_thorn98]

Thanks for the support. I think that if I could finally get the right meds that actually worked on my pain I'd be able to deal with all this. It seems crazy to be on these meds that don't work on my pain yet make me feel so out of it. I'm going to contact my Dr. tomorrow.

I appreciate all the support.

[CarlaDanDan]

Originally Posted by rose_thorn98

My turn to vent and to have a breakdown. Tomorrow will be 4 months since this all started and changed my life. I feel so sad and hopeless. No diagnosis...and in so much pain. My Lyrica seems to work a bit, but last week it stopped working as well, so in increased the dosage. But now, after only a few days, its again not working as well. I've been referred to a pain Dr. but of course can't get in for 2 months.

I just want my old body back. Its so hard to live like this, in pain all the time. Its so hard to be a good Mom to my little boy, and to work and to be normal. The Lyrica is making me so foggy and forgetful all the time. I just want to be my old self, minus the drug fog. Today I couldn't remember what Christmas presents I had gotten people. Sorry to be a downer, but I just have some days when I can't stay positive.

Dear Rose_Thorn98
hope you are feeling stronger today. Im sorry to hear that you are in so much pain and without diagnosis. I so understand you, many of us want our old life back. I wish i could change the day i was injuried, and today my life would be different. Its really hard stay positive, specially when we are in pain, but i believe a pain doctor will help you, but dont wait 2 months, make noise and get to a specialist as soon as you can.
I did a lot of noise, its been 4 years now, the beggining was terrible, alone, abroad, i couldnt understand english, have no clue about nerve, painkillers and all, i even couldnt explain how i was feeling to get help, but i found help somehow. Still a long road to go for me, lots to learn, coping, improve, and accept... one day i hope be positive whole 365 days of a year
Normal? maybe no, just different perhaps.
Your boy probably knows, children have so much more understanding than adults. Dont feel guilty, give what you can give, and love is a precious gift.
This forum will help you a lot, theres plenty of information on internet, but this forum is special to me.
Dont say sorry and listen, YOU ARE NOT a downer. We are on the same train... Thank you for share with us here
WE will be happy again, happy with who WE are, and with whatever WE have.
Please keep us informed when you go to a pain doctor
lots of love and strength
Carla

[ellieshae]

Originally Posted by rose_thorn98

My turn to vent and to have a breakdown. Tomorrow will be 4 months since this all started and changed my life. I feel so sad and hopeless. No diagnosis...and in so much pain. My Lyrica seems to work a bit, but last week it stopped working as well, so in increased the dosage. But now, after only a few days, its again not working as well. I've been referred to a pain Dr. but of course can't get in for 2 months.

I just want my old body back. Its so hard to live like this, in pain all the time. Its so hard to be a good Mom to my little boy, and to work and to be normal. The Lyrica is making me so foggy and forgetful all the time. I just want to be my old self, minus the drug fog. Today I couldn't remember what Christmas presents I had gotten people. Sorry to be a downer, but I just have some days when I can't stay positive.

sorry to hear your having a tough time, my mum who has been diagnosed with peripheral neuropathy a few months ago is in agony at the moment has had a sudden onset of itching,burning ang stinging in her hands and feet, been to the doctor three times finaly he suggested that she change her diabetic meds.. she really need to see a neurologist but cant get in untill late feb... hope u feel better

[Feel the Burn]

It is hard to try and stay positive when your dealing with pain and no idea why your suffering and you cant get a decent D;x of what the heck is going on, I have SFN, and I swear its killing me a little bit every day, how can you describe the pain and the weird body symptoms to your loved ones,?, I cant do it, there are no words to describe it, I dont remember when I laughed hard either at somtthing, when you are in pain you are just trying to get to the next minute

Getting back to the old normal self for me is a dream that I cant see coming true, eventually the neuropathy will win out,, and then what,? it surely is no way to live,

Even waking up in hte morning you know its going to be a repeat of the day before, I cant drive anymore so I;m stuck in the house all day with just my dog and a computer and my pain, its no wonder I want to go to bed at 7pm or sooner,, it takes everything out of you just to endure the few hours we get any sleep, and to get up and face another day of this nonsense

[Dr. Smith]

Originally Posted by Feel the Burn

It is hard to try and stay positive when your dealing with pain and no idea why your suffering and you cant get a decent D;x of what the heck is going on, I have SFN, and I swear its killing me a little bit every day, how can you describe the pain and the weird body symptoms to your loved ones,?, I cant do it, there are no words to describe it, I dont remember when I laughed hard either at somtthing, when you are in pain you are just trying to get to the next minute

Getting back to the old normal self for me is a dream that I cant see coming true, eventually the neuropathy will win out,, and then what,? it surely is no way to live,

Even waking up in hte morning you know its going to be a repeat of the day before, I cant drive anymore so I;m stuck in the house all day with just my dog and a computer and my pain, its no wonder I want to go to bed at 7pm or sooner,, it takes everything out of you just to endure the few hours we get any sleep, and to get up and face another day of this nonsense

Hi Feel the Burn,

The big smelly fish is that your pain is not being adequately addressed/treated. This is something to hash out with your docs (which causes me to wonder, if you can't describe your pain/symptoms to loved ones, how do you describe it to your docs?) With docs, it's not just describing pain as symptoms (which are subjective) but perhaps more importantly, what effects pain is having on your day-to-day life.

I find some good ideas googling: describing pain and adjectives describing pain

We all have to be our own advocates; if they're not doing their job, it may be time to consider whether they're the right doctor(s) for you.

Also, has anyone suggested pain counseling? I know it's not for everyone, but I also know some folks for whom it's made a huge difference.

If conditions were different, I might take it as a personal challenge to give you a big belly-laugh, but since you have a dog, I think that job is likely taken.

Doc