I agree with Smith, as long as it is the correct doctor.
A specialist neuro in PN would be the best.
Any old GP isn't the type to take her along to see.

Thanks for the support, i'm feeling a little better today mentally. Ill try to keep focused on the one day at a time thing. I guess sometimes i feel as my fiance doesnt understand what is going on, like accepting a couples bowling night invitation, and then i have to reminder her... Overrall though she has been very supportive and has a huge heart. My mother has had parkinsons for 3 years now and about 5 months back it really hit her hard and she basically needs in home care. My fiance will go up and take care of her when i cant, and has helped out more with that lately.

I like the idea of taking my fiance with me to the RIGHT doctors' visits. So far im not sure if ive found one of those yet. Both neuros i saw basically wanted to do the wait and see approach without even running blood work. Went purely off EMG results and in-office neuro test.

I have an MRI reading today of my pelvis which hopefully reveals some kind of fixable abnormality, but im not getting my hopes up too much. I have another Neurologist appointment in 2 weeks with a new DR, that probably will be better since they are part of the University of Cincinnati neurology group.

Thanks,
Steve

"My mother has had parkinsons for 3 years now and about 5 months back it really hit her hard and she basically needs in home care."

My mother had it to. Im wondering what is the link between Parkinsons and
P/N? is there a connection and can it get passed down through the genes?

I guess i should say I havent been officially dx'd with PN and the way my symptoms came on seemed to relate to physical overexertion but dont seem to be going away yet. My mother parkinsons is quit odd also, it almost seems like she may have a form of PN with it. It would be interesting to know if there is a link.

I think the reason for the visit rather than the type of doctor. My wife & I may not accompany each other to our PCP for routine stuff (colds, shots, check-ups) but we do quite often when it relates to a significant health issue. I don't usually accompany her to her gynecologist either, but when she had an abnormal test result, she definitely wanted me there for follow-up. Acting as each others' advocates, we can take notes, ask questions, etc. that are difficult to do alone and under stress/pressure.

It's a decision for each couple.

Doc

I know what it feels like to not be diagnosed. I am a 37 yr. old Mom of a 5 yr. old son. Life was going great for me last summer. Happy marriage, happy kid, happy life. Then one day I had burning and tingling in my feet. It went away and then came back a few days later, then quickly over a few weeks spread to my whole body and also with burning pain. i quickly went from being a avid exerciser to unable to barely walk.

First neruro basically thought I was crazy. 2nd believed me but could not find a diganosis after numerous tests, MRI, emg, etc. He then referred me to a 3rd neuro. He did more tests, and he said that although he can't give me a diagnosis of neuropathy, he does have alot of patients like me, who have similar neuropathy symptoms, but its not neuropathy. He said that it will probably be 10-15 years before the medical community comes up with a name for this condition I have, but that I'm not alone. He then referred me to a pain specialist. She also said she sees alot of patients like me, similiar symptoms, who have no diagnosis. She said the growing theory of the cause of this is that its an autoimmune response between different types of tissue within the body....for example, between nerve tissue and muscle tissue.

I'm not sure what to think of what the Dr's have said to me. I have finally accepted that for now, I may not get a diagnosis. and for me my main priority now is symptom relief and getting my life back on track. I started exercisisng again, by finding new ways to do it that don't aggrivate my pain. And once I'm feeling my pain is finally being managed and I"m living a somewhat normal life again, then I'll persue maybe going to Mayo clinic or Stanford to see what the real experts have to say.

I take my hubby to all my appointments with specialists. He is a great advocate for me and he also now better understands what is going on with me too. I encourage you to take your fiance with you....it make you feel like you aren't in it alone.

Hang in there, you aren't alone.

Hi there.

My name is Melody and I'd like to offer a possible help to all your symptoms. At least it helped me and I am thankful every day that I found a newer lifestyle (in my food choices). Don't just pooh pooh me just yet. Give a listen.

I used to be a morbidly obese woman with degenerative joint disease, used a cane, my knees were shot and two years or so ago I was diagnosed with diabetic neuropathy. I have been diabetic for 23 years. I am now 63 years YOUNG!!

what did I do? I started to sprout my own food, I eat organic as much as possible. I don't nor did I ever smoke, and I never EVER put anything processed food in my body. Made a big difference in my pain level.

Also (and this is fact, so look it up on the internet), I take 5000 mgs of Methyl B-12 sublingually every morning on an empty stomach).

This nipped my neuropathy in it's tracks.

Look at it this way, you have nothing to lose and everything to gain. Doesn't matter if you are overweight, a normal weight, or whatever. Your body is talking to you and you should listen.

Just google "Benefits of Sprouting" and see what it does for the body. I am not talking about Brussel Sprouts by the way. I'm talking Broccoli sprouts, alfalfa sprouts, radish sprouts, lentil sprouts.

I'm not even talking about eating a raw food diet because that did not work for me. I need the protein and I eat fish and chicken and bison meat. Look up bison and you'll see the benefit of bison over red meat (beef).

I started eating this way and let me tell you for a 63 year old woman who has to take care of sick husband I would NEVER be able to do this if I ate like all the other people on the planet.

No fast food by the way.

If you want to see how I sprout, and how I grow them in my kitchen, (and this takes 1 minute twice a day to rinse and drain the sprouts, well if a person can do one minute every 12 hours, everyone should do this.

If you think you just might be interested to see how HEALTHY EATING just might be beneficial to you, click on this link:

http://www.youtube.com/watch?v=adeh3-LcSbo

It's one of the videos I made (I belong to a sprouting message boards and we have all kinds of people from all parts of the world, and we give each other tips and better ways to sprout various seeds).

You'll see that I use stackable trays, and then put them on my shelves in my kitchen. I don't need anything fancy, because I don't have a lot of money. What I do have is MUCH LESS PAIN everywhere in my body because I don't eat anything inflammatory.

I enjoy this hobby like you would not believe.

And once you see this video, if you think to yourself "wow, let me look into this further", just go to the right and you'll see all my other sprouting videos. I have other videos up and they are all public but I just wanted you to see how easy, how CHEAP, and how healthy it is to sprout your own food.

I eat a sprout salads (that's up on youtube also). In the morning, I grab a handful of sprouts and go to my local breakfast cafe and order an egg sandwich on a toasted roll and I just take out my little ziploc bag of sprouts and I dump them on my sandwich.

I also bring a nice bag of sprouts (broccoli) to my primary care physician because he's a body builder and he LOVES SPROUTS.

Just google the benefits of broccoli sprouts and you'll see why I sprout these.

So when you get a minute (and this is for everyone who sees these postings), why not look into sprouting. You can incorporate it into whatever you eat and they taste wonderful.

I also make an item called Birds Nest patties in which I use my bean sprouts (yeah I grow my own). And I have them up on youtube too.

I think many of our diseases can be traced back to what we put in our bodies.

We only get one body. I plan to be good to mine from now on.

All the best

Melody