While reading your post, I completely understand how you feel about acceptance. I am also going through the same process. This pain and spawning into other issues - lung problems and GI issues are just difficult to handle. When I started on this PN pain, I thought it was just one of those "passing discomforts" that with the right diagnosis and medicine, it will just go away. My husband is a very wonderful, loving and supportive man. I feel so sorry for my husband for he has to deal with the stress of living with someone like my condition. You are absolutely right, this is not the life we planned. What is even more frustrating is wanting to do more but you couldnt. We just have to do the best way we can and live one day at a time.