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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#13 | ||
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First of all if any one has any doubts about Paula's drug use please watch E's "Hollywood True Story" on the woman- all doubts will be erased.
The woman can barely make a complete sentence for any part of the interview and she has the twitches and head turns of a long term(opiate) abuser. I live in Los Angeles and it (the town) as well as the RSD community itself are both very small indeed . I know her and we have many friends , doctors and therapists in common. She does NOT want to be a spokesperson for this disease-NOT going to happen . If she were coherent it would be an excellent opportunity to show that with proper supervision and care( and many assistants ![]() Also,her RSD is limited to a rather small part of her body.Her other pain issues are from disc and other back, neck and other injuries. I also don't think ketamine is her drug of choice.I have spoken with many doctors on the topic and daily long term use has not been studied extensively It has thus far been shown to be quite toxic to the liver when taken in that manner. Having said that support is one thing- There is no reason not to"support" her from afar - without taking it any further . Here my friends is the GREAT news . Things are really starting to happen in LA . A group called "Life Goes on " started by a woman who "had" full body and is still sick with RSD is holding a first ever Benefit at the "House of Blues" in LA on Sunset on March 3rd(our awareness month!) to benefit RSDer 's who lost everything in the California wildfires.Her long term goal is to open an RSD clinic in order to make early diagnosis and treatment possible for everyone !!!!!!!- and to help with housing and transportation needs etc .Her vision is large indeed !. More benefits are planned and she is getting the word of RSD out which is most important of all - this type of thing will spread to other cities once a prototype exists .She is calling her event "History in the making" Another group called "Hollywood Cure for Pain " ![]() It is run by a guy with RSD and his goal is to raise awareness for RSD. Lisa Marie Presley is involved and he is slowly moving up the Hollywood pecking order to get people involved in the cause . It has grown extensively in it's very short existence an it is this guys full time job. I will be attending all of these upcoming events and will report back here. I have asked some friends of mine to play her benefit-fingers crossed- it is a small venue for them ![]() So things are looking up for our little known but not uncommon disease .We do not need Paula Abdul!!!! I hope you are all feeling OK Much pace GnP |
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"Thanks for this!" says: | nopainever (01-21-2008), RSD_Angel (01-21-2008) |
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