Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-20-2008, 10:20 AM #13
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Goodn'Plenty Goodn'Plenty is offline
Member
 
Join Date: Sep 2006
Posts: 147
15 yr Member
Default

First of all if any one has any doubts about Paula's drug use please watch E's "Hollywood True Story" on the woman- all doubts will be erased.
The woman can barely make a complete sentence for any part of the interview and she has the twitches and head turns of a long term(opiate) abuser.
I live in Los Angeles and it (the town) as well as the RSD community itself are both very small indeed .
I know her and we have many friends , doctors and therapists in common.
She does NOT want to be a spokesperson for this disease-NOT going to happen .
If she were coherent it would be an excellent opportunity to show that with proper supervision and care( and many assistants) one can enjoy a full life with some proper pain management.However that is clearly not the case and her "celebrity "is too important to her .
Also,her RSD is limited to a rather small part of her body.Her other pain issues are from disc and other back, neck and other injuries.
I also don't think ketamine is her drug of choice.I have spoken with many doctors on the topic and daily long term use has not been studied extensively
It has thus far been shown to be quite toxic to the liver when taken in that manner.
Having said that support is one thing- There is no reason not to"support" her from afar - without taking it any further .

Here my friends is the GREAT news .
Things are really starting to happen in LA .
A group called "Life Goes on " started by a woman who "had" full body and is still sick with RSD is holding a first ever Benefit at the "House of Blues" in LA
on Sunset on March 3rd(our awareness month!) to benefit RSDer 's who lost everything in the California wildfires.Her long term goal is to open an RSD clinic in order to make early diagnosis and treatment possible for everyone !!!!!!!- and to help with housing and transportation needs etc .Her vision is large indeed !. More benefits are planned and she is getting the word of RSD out which is most important of all - this type of thing will spread to other cities once a prototype exists .She is calling her event "History in the making"
Another group called "Hollywood Cure for Pain " is holding benefits all over the place in Los Angeles .
It is run by a guy with RSD and his goal is to raise awareness for RSD.
Lisa Marie Presley is involved and he is slowly moving up the Hollywood pecking order to get people involved in the cause .
It has grown extensively in it's very short existence an it is this guys full time job.

I will be attending all of these upcoming events and will report back here.
I have asked some friends of mine to play her benefit-fingers crossed- it is a
small venue for them


So things are looking up for our little known but not uncommon disease .We do not need Paula Abdul!!!!

I hope you are all feeling OK

Much pace
GnP
Goodn'Plenty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
nopainever (01-21-2008), RSD_Angel (01-21-2008)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Prayers for Paula... michael7733 Parkinson's Disease 1 02-02-2007 10:23 AM
Paula Thelma Parkinson's Disease 7 01-31-2007 05:28 AM
Thank all of you for your support. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 2 11-30-2006 09:47 PM
E News's story on Paula Abdul dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 17 11-12-2006 04:10 PM
Support Groups DaleD Parkinson's Disease 10 10-23-2006 06:24 PM


All times are GMT -5. The time now is 10:05 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.