Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-02-2010, 07:58 AM #18
lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
lorigood243 lorigood243 is offline
Member
 
Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
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Dear Finz

We all embrace you and want to offer any kind of help to fix this enviornmental pain you are living with! Heres the truth of it all: You are trying to live like a normal person but you arent. Your family is tearing you apart because you arent performing to their expectations of what a healthy mom should be doing! You need emergency counseling to improve your life. You cant clean your cluttered home by yourself or fix all the meals and clean up or drive everyone all over the city and be in horrible pain! YOU NEED HELP NOW! Your family is rude and need a reality check.

I went from being a normal mommy of 14 yr old twin girls with a hubby, had gallbladder surgery and have been bed ridden since..long story. My hubby is a stay at home care taker of me and literally waits on me hand and foot because i cant do for myself very much. I work from home on the telephone and computer selling office supplies. I earn th money he does all the rest. I feel horribly guilty and dont know what my future holds but my family cares for me and my illness/disability. My girls are 19 now and away at college but they call me at least twice a day and face book with me at night.

Either walk out on your family or have an intervention and get them on board to help you. you deserve love and respect. You are deserving and worthy of good. and if they arent willing to step up to the plate, someone else will. I know its hard to be strong when you are sick. I just want to say YOU ARE SPECIAL!!!!!!!!!! Get help now!
love and blessings
Lori



Quote:
Originally Posted by finz View Post
I should preface this by saying that I do know I have a lot to be grateful for. While my pain control isn't where I'd like it to be, it's soooooo much better than it was a few years ago. And I have a big vacation coming up ! I leave for a week in Key West for a parrothead convention on Monday.....Woo Hoo !

My vacation plans are part of the problem. I'm trying to get the house a little picked up so my 'babysitters' for my 14 and 16 yo old boys won't be totally disgusted. While my house is not quite bad enough for an episode of 'Hoarders' we could definitely star in an episode of 'Clean House' Trying to engage my kids to help is like pulling teeth. I ask them to take some of their stuff to their room and they pick it up only to dump it the next room over......out of my sight temporarily. If I could easily move around from room to room to follow them, I could have done the job myself !

Now some of the mess is mine.....and I have been trying hard to work on that, but my efforts have been hampered. My husband already left for the trip. He went a week early to go fishing. Not that he would do any of the cleaning, but normally he would be the one going to the grocery store, cooking dinner, and driving the kids to all of their activities. Monday I spent the whole day driving around. My 14 yo's friend's father passed away, so I got him dismissed from school, took him to the funeral mass, then the burial, then the 'post party' I had an hour to collapse at home then off to bring the 16yo to guitar lessons......all the while not able to take pain meds because I was driving, causing a massive flare. Tuesday night spent an hour waiting for the 14 yo after football practice, only to eventually find out he got a ride home from someone else. Tonight it was trying to get the 16yo to unpack the dishwasher, so it could be loaded again to clear some room so I could make dinner when I got home from the football pickup, only to have it still not done when I got home.......and both of the bitching because dinner was so late.

After dinner, when I asked for some help picking up, my 16yo INFORMED me that "this you being sick thing is really getting old. It was okay in the beginning, but we are sick of doing crap for you that mother's are supposed to be able to do......we are not your servants."
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Wishing you a day of pain free movement that turns into forever!
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