Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-11-2011, 08:14 AM #11
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Thanks for all of your input.

Lori, we are going to put off hip surgery as long as we can. I'm in PT now but that hip pain hasn't stopped yet. Hopefully as we get farther along in the PT it will.

As far as surgeries, I've had more then my share and the ones I had blocks with I did fine. The Anesteologist are getting better at know what we need when we have RSD. I have pain in my right side also. Drs. have said it's the RSD. I had shingles and had my gallbladder out so I don't know which brought it on.

Daniella, I agree on the treatment resistant thing with you but I do believe they can only get us so far. I can't do the meds. I tried St. John's Wort years ago and had the same side effects from it that I had from Prozac. I have tried all of the depression meds. Due to stomach issues we have pretty much backed away from trying them anymore along with most any othe med.

I have dealt with depression from the time I was a child. I was suicidal as far back as I can remember. I can remember telling my Dad, I would like to kill myself and he told me what the Bible said about suicide. I remember that so clearly. My Mom and Dad were good parents even though they had 10 of us to contend with.

After I fell and developed RSD, I had a complete breakdown. I signed myself into a place and because I couldn't take pills they wouldn't keep me. They didn't want to take the time for councelling me. That's when my PCP said he'd do it, 12 years ago. He saved my life, no doubt about that one. He kept his whole office on call for me if I needed anything. While he was helping me I remember he was helping a 15 year old boy too.

I've came along way but I still deal with the suicidal tendencies and depression even though my life is busy and I shouldn't have time for it.

People are right though. We can be in a room with a 1000 friends and still feel like we are alone. I sometimes too feel like I should start walking and keep walking until I come to the end of the road. It's a strong feeling.

I do know it's a chemical imbalance also that we deal with along with the RSD.

I can spot a depressed person too. When they start talking to me and I listen to their drawl and what they are saying. I have a good good friend that is as bad off as I am and she has a prestigious job and can't let anyone know it for fear of losing it. We talk often. Even though I'm this way, I don't want to let anyone stay this way if I can help it nor lose anymore friends to suicide.

Thanks for the help.
Ada
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