Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-28-2007, 08:12 AM #1
rsdpainradar rsdpainradar is offline
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Default Bob Woodruff and TBI's on ABC

I know this is going to sound hash and I don't mean for it to, please cont to read and you will see where I am going with this, I do wish for cont progress for Bob Woodruff and all others that have been injured and are fighting to make progress and return to their normal life or at least be able to return to their maximum potential possible.

For the last 2 days, I have seen so much on TV about Bob Woodruff and the veterans that have encountered TBI's (tramatic brain injuries) at war. They are reporting about how difficult it is for the injured to get their correct medical care and extended therapy needed and how they come back from war, only finding it difficult financially and that many are going bankrupt.......Many are also complaining it takes "so long - days even months or a year" to get approved for disability. Many injured from war with families that are fighting for them seem to prevail and get more treatment and therapy to assist them in working through their disabilities so that they are able to return to a somewhat normal life but for those that have no family little is offered and often little progress is often made, leaving many unable to perform even their simple daily functions without assistance of others.

Now from what I understand....since this has been brought to public attention by Bob Woodruff's unfortunate injury and his recovery process (being an ABC employee sure didn't hurt his chances of getting the best treatment either)
the president is now heading to the forefront of this topic to make sure all injured from war TBI's will get the treatment they deserve. Numerous times during televised programs, it has been mention how these injured, were just "doing their job".

This is the type of public attention that is needed for IW's. It's a shame attention can't also be given to the fact that Bob Woodruff is an IW not a soldier. This is what many of us have said would have to happen for IW's to get the attention needed. If the same attention could have been directed to the IW's and their RSD, can you imagine the progress that would be directed toward its treatment and research?
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Old 02-28-2007, 12:36 PM #2
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Dear rsdpainradar,

I am so sorry. But I want to beg of you not to give up.

Do NOT ever loose the fact, you were 100% STABLE when you went in. You were given several injections before going over the gulf RIGHT? Just a hairdressing guess but the injections would really make your immune system weak.

Do you feel ill at all?

I hope to God that you get the help in anyway you can. One of my son's was in the Gulf in the last war. Love and Hugs, Roz
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Old 02-28-2007, 12:42 PM #3
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Come on bloats.
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Old 02-28-2007, 12:57 PM #4
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Default Hi,

I saw Bob Woodriff on Oprah yesterday. At least he is fighting for something he believes in but I agree where are the fighters for the people that served in the Iraq War and other wars.

My brother served in Vietnam and died from the Agent Orange. He couldn't get any help he needed to get better. He died at 56. I also lost a freind to the agent orange. His wife got his first check the day he died.

There are just not enough people out there fighting for a lot of these causes that should be delt with. I've always said I wish we could find someone famous to get the ball rolling with RSDS. It takes a famous person to get that attention or a person with a lot of strength to fight the government for what is needed.

Ada
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Old 03-01-2007, 01:57 AM #5
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Default Lucky guy

I say he is one lucky guy that couldnt keep his head in the tank!
He really kinda deserved what he got, goin over there and then not keeping head his down. Tsk tsk.



I agree he is doing a good thing, BUT! There is a hell of a lot more injuries besides head injuries, and all of them are having the same trouble as we are getting disabilty. Face it, the government is all about putting money in the pockets of themselves, and special interests. We dont matter.....until we dont pay our taxes on time.

/steps off the soapbox

He and the news are just doing what they always do, skew it to their opinion.
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Last edited by allentgamer; 03-01-2007 at 01:59 AM. Reason: left out a word or two
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Old 03-01-2007, 02:04 PM #6
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No one deserves any such injury. l feel that is bitterness talking. Saying such things does not take our rsd away .... God bless all.
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Old 03-02-2007, 04:56 AM #7
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Default He is a newsman

He really has no business in a tank in the first place. His own camera man said he couldnt keep his head in the tank.

When I was in Africa I faced down many guns, most were stuck right up my nose! I watched them shoot 2 people in the head for being gay! And shoot 100 people on the beach for not agreeing with the then president. I was the camera man. Thought I was gonna be buried in foreign soil.

That country was not at war!

Iraq is war, and people are getting killed and maimed on a daily basis. What did he think was going to happen? I watched him, he was on a joy ride. One he wont soon forget, and if he goes again I bet he keeps his head in the tank!

Notice they fired the General in charge of the VA. One news man gets hurt and brings light to the subject, and BAM he gets action! We need one newsman to get RSD LOL. Or at least a caring individual to bring light to our cause, and I dont mean another article about one persons plight. We need an in depth report like the one done on the conditions at that hospital.

I might be a little cynical, but I had a surgeon turn my life upside down. Couldnt even touch him with malpractice because the laws prevented it. Kept working even after that tragedy, but was hurt on the job, and again got hurt by the laws. You cant touch sovereign tribal business, even if the state they are in has employment laws. When you crossed the tribal border you may as well be in Siberia.
Hint: be wary even gambling on these properties because you have zero rights when on that property.

After paying heaps of taxes throughout the years the government is now fighting me tooth and nail for social security. Same problem our boys being sent back hurt are facing. They shouldnt have to fight for any care, or money, and shouldnt need a newsman to get hurt and bring light to the subject so they can get this care, treatment, or money.
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Old 03-02-2007, 11:20 AM #8
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Default Allen,

You are so right on all of that. I don't know any of the boys and girls that are over in Iraq but it bothers me that they are coming back to nothing. Having to file bankruptsy, fighting for medical care. If and after this war is over I will be amazed at what comes out of it for the ones who fought over there and come home injured for life.

SS has always been a hard *** fight for most everyone. I often wondered how 2 people can have the same medical problems and one gets the SS quicker then the other.

I have seen a lot of that due to watching so many people around here fighting for it. I sometimes think Co. holds the lead for the most disabled. I have been told that we hold the lead for the most people with MS. I thought that was interesting.

SS is the most unpredictable thing I have ever seen. At this point I still don't know what I am going to draw since Bill passed. They have sent me letters on 3 different amounts. I think it goes back to where there are too many irons in the fire. One hand doesn't know what the other one is doing.

I do hope you get your SS soon. Mine was definately no easy task when I got mine. I fought for 8 years. I think I broke the record. Actually they kept losing my records. LOL

When I went down to take care of my SS after losing Bill, they had down the wrong year we were married and she wouldn't take my word for it until I took in my marriage certificate. She also had down that his other 2 kids were mine. She had the wrong year that Bill started drawing SS.

That is a perfect example of what we are dealing with when it comes to SS. Make sure all of your files are where they should be. I was so bad off at the time I couldn't keep up with mine.

Ada
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Old 03-03-2007, 11:57 AM #9
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I Knew I Would Get Flack For My Comment, But I Stick By It.
I Feel For Anyone Dealing With Ssd. I've Been There, I've Also Fought Ltd. I Am No Stranger To Pain. I Was Born Diabled, I Was Abused For It, And I Fought To Be 'normal', Marrying, Having Children, And Grandchildren, One Who Lives With Me Now ... Getting An Education And Becoming An Icu Rn. I Had My Life Ripped Out From Under Me Just Like The Rest Of You, But I Do Not Believe It Knocking Someone Else Down To Make Myself Feel Better Or More Intitled To The 'system'.
No Matter How Someone Gets To The Point Of A Painfilled Life .. And That Man Was Doing His Job ... No Matter How You Think He Should Or Should Not Have Been Doing It .... And He Has Suffered And Is Now Where He Is. So, I Repeat ... No One Deserves Such A Thing. If Anyone Said You Deserved Rsd, For Whatever You May Or May Not Have Done In Your Life, You Would Not Take Kindly To That. Let's Stick Together ... Those Of Us Who Suffer And If This Man Now Brings A Positive To Spin To The Returning Vets And Their Plight, Then We Will Know His Tragedy Was Worth It All.
Joan
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Old 03-03-2007, 07:21 PM #10
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Hi Joan,

I have a small request, would it be possible to type your posts without the capital letters at the start of every word? As u know, many of us have blurry vision - RSD and meds both seem to bring it on.....I'd love to be able to read your posts but I find that style so hard to focus on, can really only manage a line or two, then I lose it.....if it's a problem, then just type all small letters..is that possible?
Sorry to have to ask

Hope your pain is less today,
all the best!
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