Wow Heidi I really wish you some relief.
I remember when this all started for me (before diagnosis) I called ortho. surgeon's office in excruciating pain and they said, "well, just go to the E.R."
I wanted to throw the phone at them!

But, really could that be an idea? Don't they HAVE to treat you in E.R.
insurance or not? And isn't it in the patient bill of rights to have some level of
pain relief?

Magnesium citrate is OTC & does help calm nerves.

Bram has good advice, it IS hard at first to make yourself try deep
breathing excercises but it does help slow the combination of pain, stress and emotions from spiraling down.
Wish I had something better to say. Please hang in there.