Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-12-2014, 04:44 PM #8
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Heidi, when you're in that much pain, who gives a cr@p what peope think? Most folk don't/can't/won't understand what it is we're dealing with on a daily basis

If you need to go to the hospital because you're just in too much pain to function without help, then go. ER might not be the ideal place for a CRPSer, as I think a few have attested when they have tried it, but if you are out of options then go for it - there are some good doctors out there. Maybe take a print off of some basic CRPS information for them, and remember not to let them use a BP cuff on your affected limb, or take blood from it etc. Whoever takes you there just might even realise how bad this beast can be...

Remember, even if no one else 'gets' you and your pain, we do For good or bad, we do understand, and we're behind you all the way. Hang in there. Hope you get some sleep tonight. I'm off to change into my lightweight but warm PJ bottoms, because my trousers have fired my leg up into all sorts of red/hot/stabby/burning horribleness. Some days I really really hate this

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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HeidiB (01-12-2014)
 


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