Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-02-2008, 01:50 AM #21
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Tayla.

We have a Medicare system... but.... it is only for those who are retired 65 and over (I believe that's still the age... it changes from time to time)

OR

those who have an "acceptable" disability. (which is hard to get---many people wait YEARS to get approved for Social Security Disablilty and Medicare)

We also have State programs...Medicaid, MediCal--California....not sure what all states call their programs but it can be as hard to get as Medicare.

Other than that it's either private insurance or cash out of pocket.

Yes, the HEALTHCARE system in the U.S. just plain SUCKS!!!


Abbie




Oh Abbie,

Never will I complain again. We truly need to be ever so grateful here.
I have private insurance plus my case is a Traffic accident case so I am covered by TAC insurance who pay everything related to my accident.
We pay $5000 per year for our family to be covered privately and then pay 1.5% of our income into Medicare---we just don't notice it as it is out before you get paid.
For this we can have any surgery, procedure etc, including HBOT and Ketamine Infusions and it is completely covered.
Of course there is a minor downside and that is there is a waiting list for most non urgent surgery.
Take care lovely people
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Old 03-02-2008, 09:32 AM #22
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Default Hi,

I think one of the main things here is that private insurance just cost too much. I talked to a lady yesterday from England and she explained how their insurance worked, like Tayla is talking about. You have to wait for non-emergency surgery. She is married though and lives here and she said she and her husband pay over 800. a month for insurance for just the 2 of them.

The second thing is that it takes too long for a person to get Social Security that really needs it. After that they have to wait 2 years for their Medicare. Now that payment out of peoples SS checks have gone up to over 90. a month for the medicare. That's a lot when people only draw 5 or 600. a month.

With Medicaid ,the state funds, it pays for everything. You only have to pay a co-payment of 2. to a Dr. or for meds. That wasn't too bad to get here in Co. But I think Co. has a good health care for the elderly and disabled. They try hard to take care of them here. We have the home-health care for the elderly and disabled and they find ways of getting the items you need for your home such as bath chairs and the support things for the bath tub. I know there are states that don't have anything for the elderly and disabled like Co. offers. Every state should have more.

It's the federal part of the Government that is messing things up for people. They get slipped a dollar in their hands to overlook what the big companies are doing to us. Such as the insurance, utility, and the pharmaceutical companies. When they turned all of the medical care part over to the states so they could keep their money then that made things worse.

Ada
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Old 03-02-2008, 10:40 AM #23
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The ins. in the usa, is a big joke, a huge one. We pay around 120.00 a week for our insurance thru the husbands job. I do have medicare, but thanks to someone screwing around at their office with files, mine along with others I'm sure, got cancelled. They stopped taking the payments for it out of the monthly SSDI check, and claim they sent a bill, which they never did. So they stopped it. I had to re-enroll....and of course that meant waiting for their open en-rollment dates to roll around, then once that happened, which was in Jan. thru March....they say it will take them until July 1st to get it back on. Just another way for them to increase your premium. I was one of the lucky ones that got suckered by them this round...so keep a close eye on yours folks, if you happen to have it auto deducted from your monthly check.

So when July rolls around, I'll have my medicare back. But, even with that, they won't approve the freezing. They will only pay on the burning.

As for my RSD, I have lifetime open medicals on that, and work comp will have to pay any and all bills that involve the RSD arms. So far they have paid every cent. I've never had to fight them on anything. I'm one of the lucky ones when it comes to work comp.

And yes, Tayla, I can have the surgery I prefer, if I pay cash for it. Which would cost around 10k to have the partial hyst. Or the Freezing would cost around 6k.

Being on medicare, and raising two teens, one starting college, I can hardly afford that...

Debbie
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Old 03-02-2008, 07:16 PM #24
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The ins. in the usa, is a big joke, a huge one. We pay around 120.00 a week for our insurance thru the husbands job. I do have medicare, but thanks to someone screwing around at their office with files, mine along with others I'm sure, got cancelled. They stopped taking the payments for it out of the monthly SSDI check, and claim they sent a bill, which they never did. So they stopped it. I had to re-enroll....and of course that meant waiting for their open en-rollment dates to roll around, then once that happened, which was in Jan. thru March....they say it will take them until July 1st to get it back on. Just another way for them to increase your premium. I was one of the lucky ones that got suckered by them this round...so keep a close eye on yours folks, if you happen to have it auto deducted from your monthly check.

So when July rolls around, I'll have my medicare back. But, even with that, they won't approve the freezing. They will only pay on the burning.

As for my RSD, I have lifetime open medicals on that, and work comp will have to pay any and all bills that involve the RSD arms. So far they have paid every cent. I've never had to fight them on anything. I'm one of the lucky ones when it comes to work comp.

And yes, Tayla, I can have the surgery I prefer, if I pay cash for it. Which would cost around 10k to have the partial hyst. Or the Freezing would cost around 6k.

Being on medicare, and raising two teens, one starting college, I can hardly afford that...

Debbie



Debbie,
It does seem that if your are going to get RSD then it is better alround if it is as a result of a traffic or work accident
Like you over there, we are well taken care of in every way but only once you have met their very demanding criteria for them to accept liability.
I don't have to tell anyone how gruelling that is.
I am sorry that you have to be so out of pocket for a procedure that will improve your quality of life. Sometimes I wonder if men menstruated would it all be different--
I suppose we do pay quite a lot for Private Health Insurance and there have been times since my accident when 6 children and no employment for me meant we really struggled but then I looked at all the metal in their mouths that was being paid for by our Private Health and just found another way to cut costs
The wonderful thing for us large families is that the Family insurance covers everyone in the family up to the age of 21 or longer if they are at University and it doesn't matter how many are in your family.Such a blessing for sure.
Take care and hope that you can get help for your problems other than your RSD.
Tayla
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Old 03-02-2008, 07:25 PM #25
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Default RSD and Menstral cycle

Hi Debbie and Linnie,

I, too, had heavy periods and pain due to fibroids. I tried the DNC that didn't correct the problem. I then decided to have hysterectomy and keep my ovaries if they were healthy and they were. As is turned out, the surgery was done by laprecope (bad spelling) The recovery time was so short comparied to my C-Section by our one and only child. As it turned out, I got RSD two years later the day ofter Breast surgery. Of course, it took lots of pain and lots of Drs. to get it diagnosed. I hope whatever direction you go,
works out well for you. I'm still trying to figure out how to make the icons work in the right spot. I just realized why to may want the freeze,
so you don't get RSD in your uterus from surgery. I'm curious if the way I had it done doesn't constitute surgery with risk of RSD???

Lots of soft hugs, loretta
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Old 03-02-2008, 07:56 PM #26
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Hey there Ms. Debbie...remember me?. I read that hormones did play a big role with increased pain at the time of the cycle. I remember reading it in a medical magazine at my Pain management Doctors office last year and discussing it with him. Sorry I don't remember the magazine but it did say they were continuing to do research regarding it.

Sorry your are going through all that your describing. Hopefully things will get straighten around for you and you will get some relief. Love, love, love our insurance companies though. I'm sure your Doctor is doing the best he can do for you right now other wise I know you would be looking for a new one. Take care...
Hugs, Jewells
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Old 03-03-2008, 12:02 AM #27
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Hey there Ms. Debbie...remember me?. I read that hormones did play a big role with increased pain at the time of the cycle. I remember reading it in a medical magazine at my Pain management Doctors office last year and discussing it with him. Sorry I don't remember the magazine but it did say they were continuing to do research regarding it.

Sorry your are going through all that your describing. Hopefully things will get straighten around for you and you will get some relief. Love, love, love our insurance companies though. I'm sure your Doctor is doing the best he can do for you right now other wise I know you would be looking for a new one. Take care...
Hugs, Jewells

Well my my my my!! Ms Jewells!! It's great to see you girl!! I could never forget you!! Girl, our status might say junior memebers, but we are far from that! Having been on BrainTalk, and then the forum JL ran prior to that...we are far from newbies eh.... ... girl it's hard to believe that it's been over 8 yrs. for me now on these boards...unreal at times..ya know.

I do have a wonderful gyno doc...he is the best! I've seen him now ... ohhh letsseeee...about 13 yrs. I guess...he is the one who dxd me with the endo back in 96.....wow..long time ago...but your right, he is great...known as the mommydoctor....but he treats us that aren't pregnant to...he did all my test so far in his office....that I'm grateful for...

however..that last one he did, with the camera....he gave me three diff meds prior to..one I had to take so many times a day for three days...then the other two...two of each that morning..two hours before my time in his office....girl...I'm telling you .. I don't recall even riding to knoxville! I do remember him telling me to put my feet in those things...and I said..'yea..like you haven't seen that alot lately' laffs! After that I don't recall anything....the next day..when I finally woke up at home....I asked...who's shoe's are those? and the girls said...mom their yours...I'm like no they ain't....they were like.. yea, you went to the mall after the doc apt...OMG!! I let them take me shopping!! and I didn't remember it!!!! I got shoes...that were just ugly as homemade sin...and two shirts...I swear I'd never wear....who in their right mind would take someone that far out of it shopping?!?! laffs...

I made them promise me, if I ever have to take meds like that again...never take me to a mall!! laffs

Girl, it's so great to see you...

Big hugs!!
Debbie
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Old 03-03-2008, 12:10 AM #28
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6 Kids?!?!? Tayla....all I can say is ... better you than me! ... The two I have is way plenty! Here you can keep them on your private ins. until 18, or out of college. So that's ok.

And I do agree...if men had a monthly visitor...things would definitely be different....laffs...we'd have one week off a month with pay for our periods...

Hi Loretta,

It's nice to meet you to. Those smilies can be fun

Thanks for sharing your story about your female issues. It's always good to hear what the outcome is for others. Helps me make a better a choice in what I should or shouldn't do. I do know that any surgery puts me at a higher risk for the RSD to spread, and that's not something I want to happen. I worry about that more than anything. I have kept it to my arms/shoulders/upper back...for this long...I sure don't want it to go any further than it has already...

I just hate that 'that time of the month' causes added swelling and pain to my arms...

At least I can look forward to not having that increased body swelling and pain in the RSD arms...once I do have something done to stop the monthly visitor...

hugs Loretta...

Debbie
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Old 03-03-2008, 09:40 AM #29
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Default Hi Debbie,

I had a hysterectomy in 95 due to fibroids and other problems. The Dr. I had was suppose to do a complete one due to all my problems. He decided he'd leave one overy in that wasn't any good. So in 2001, I had to have the other one taken out along with a lot of scar tissue and ended up with RSD in that area. The hospital where I had the surgery knew nothing about blocks and still don't or I would have had one the last surgery. It turned out my other Dr. said the overy most likely wasn't any good and should have been taken out at the first surgery. Now I am paying for a Drs. mistake. This Dr. also got ran out of town not long after my surgery also.

It's hard to know what to do to deal with what is going on with you. Any surgeries though I would ask for a block first.

I'm glad to see Jewell's also. I have wondered many times how you were doing?

Ada
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Old 03-03-2008, 12:38 PM #30
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I had a hysterectomy in 95 due to fibroids and other problems. The Dr. I had was suppose to do a complete one due to all my problems. He decided he'd leave one overy in that wasn't any good. So in 2001, I had to have the other one taken out along with a lot of scar tissue and ended up with RSD in that area. The hospital where I had the surgery knew nothing about blocks and still don't or I would have had one the last surgery. It turned out my other Dr. said the overy most likely wasn't any good and should have been taken out at the first surgery. Now I am paying for a Drs. mistake. This Dr. also got ran out of town not long after my surgery also.

It's hard to know what to do to deal with what is going on with you. Any surgeries though I would ask for a block first.

I'm glad to see Jewell's also. I have wondered many times how you were doing?

Ada
Ya know Ada, I didn't even think about blocks. I'm glad you mentioned that. But who do I talk to about that? The pain doc? or the gyno? Who would do that? would that be something to be paid for by wc? Or my ins? ugh..this all sucks.

Do you think I should ask for blocks for the burning/freezing...should I do one or the other? There is no cutting...just destroying the lining...ugh...this is all so stressful.

I'm so glad I have you to ask all these questions

Hugs
Debbie
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