Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-14-2009, 09:31 AM #11
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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You're welcome. I've have so many episodes of total despair since getting sick! For the most part, the people on this board, my husband, my PT and a few of my friends have helped keep me sane. And, of course, my dear sweet little dog who faithfully walks with me at least 3 or so miles every day. It's just so crazy!! I can SO sympathize with you.

My problem for well over a year was that no one believed in my pain, and two of the "supposed" best docs in RI messed me up with a debridement surgery, aggressive PT, repeated icing, and over 30 trigger poing injections. I think I probably had RSD for at least a year before I was diagnosed. I was in so much pain it's amazing that I didn't lose my mind.

My doctors in Boston told me last Monday that they were going to submit my case to a pain clinic where ketamine is administered. But today is Thursday and I haven't heard anything yet, so I'm getting nervous that perhaps they aren't going to accept me. I started taking methodone a week ago for pain. It works really well, but I am so stupid on it! I definately can't take it forever and continue to work. If I could get the ketamine I could wean myself off of ALL my meds. How cool would that be?

Take care, Sandy

P. S. If you read some of the old posts here you'll see where it's reported that for some pregnancy puts their RSD into remission.
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