Good Morning! doing my usual Sunday routine -- laundry, grading, preparing for class.

I saw the movie The Switch(with Jennifer Aniston and Jason Bateman) last night. It was cute,but I don't think it was worth 8.50. but if you do netflicks, it will probably be available by summer.

Sandy, sorry that Dantrolene is not working for Jim, or rather bothering his tummy. He definitely does not need to lose any more weight. I have not notice much of an effect from the tizantidine, but I am at a really low dose. I think my neuro may increase it once I am on this dose for two weeks.

Good Sunday morning...sunny here, and cooler.

Sandy, I'm sorry to hear about Jim's med not helping...stomach/digestive problems are so crummy...I hope and pray that Jim gets on a med that can help and that he has a healed tummy very, very soon...:hug:

Barb, I think DH & I now average about one movie a year...I just don't think many are worth being raked over the coals for the amount theatres now charge, esp when people are so inconsiderate-talking, putting their feet on the back of my seat, not turning their phones off...etc. Netflix it is...

I went to DH's team's party last evening...I lasted about 2 hours before the leg spasm pain became too unbearable and had him take me home. I was having a major pity party all by myself. Then I saw that my sis' eldest had left a voicemail on my cell...he asked me to call his mom...she was cryiing and inconsolable.
So I did...and she has been told once again that there is nothing they can do for her, and she is dying...her hemoglobin is very low, her infection continues despite loads of antibiotics, and now her liver is swelling her belly. We talked and cried for at least an hour, maybe more...she is so scared. I'm still not willing to tell her to stop fighting for her life, but it doesn't look good. I think it's time to help her get some peace. I don't want her to pass on all anxious and panicky. I told her I'd look after her adult kids (wait til my DH hears that one:eek:). She is most afraid to leave them, because 2 of the 3 are not good decision makers. But I felt that I would give her mind some rest if I told her that.
I'm thinking now that I'll have to go back to Detroit this week...but my walking is so bad right now that I'm actually afraid to be away from the house. I'm going to call my neuro tomorrow and discuss it with his nurse, and see what she thinks we should do to get me back on track. I feel so icky...my calf/shin spasms are back, my quads lock when I stand from a seated position, and I almost fell over suddenly this morning...luckily the counter was right behind me and I grabbed on. It took several seconds to feel stable enough to let go. That hasn't happened like that before. Usually it will occur when I move my head suddenly or change positions. But I was just standing there...
Sorry for the length...so much turmoil this weekend...it's nice to have a place to vent...

Hope all of you have a good Sunday...the days sure are getting shorter quickly...:(

Good Morning! :) Well, it's afternoon already but who's keeping track!?

Debbie, I'm so sorry to hear about your sis. It's hard to watch someone you love suffer. You're a good sister to tell her you'll watch after her kids. I hope you get to feeling better so you can go to Detroit.

Sandy, good luck with finding a med that works for Jim. why do they all have to have such ridiculous side effects? :confused:

I made a grocery store run and that's going to be my only outing for the day. It's very hot but breezy.

Hope everyone has a good Sunday. :grouphug:

Debbie, Just wanted to send out some hugs :hug::hug::hug: to you. I am sorry about your sister, but it does sound like it may be time to get hospice involved.

Debbie, Jim's legs are crossing over one another at night. It's starting to scare us because of atrophy. :( Why does this damn disease have to be so flipping hard to deal with?????

Hi all, Hope your weekend has been ok. Have not done much except relax have noticed my ballance is getting worse especally when I'm tired :( I'm not very good at remembering names and things so sending big hugs to all who need them. Extra big for Sandy and Jim :hug::grouphug::hug::grouphug: Love to you all Jackie xxxxxxxxxxxxxxx:grouphug::hug:

I finally get a minute to breeze through here. I read today's posts and :grouphug: to all that need them. Special gentle :hug: for Jim... I hope they find something to help Sandy.

I'm doing ok. Just not sleeping well, so it throws my whole day off. Heck my whole summer has been off. Thought we were cooling down, but it was 103 in my yard today. It's 8pm and it is still 90 out. It makes for a tired, grumpy, spastic me.

:grouphug:

Pam, it's still hot here, too. Fall can't get here soon enough for me.

Nothing special planned for today. Just the usual laundry, straightening up and reading.

I saw some mums at the grocery store yesterday. They weren't blooming yet but a few had poked out and they were beautiful. Orange and yellow. I just love Fall mums.

I need to make a small loaf of bread today. Maybe I'll try a different flavor. DS really likes the honey wheat bread I make. I like it, too, but I have to watch how much bread I eat.

I've started researching GMO foods (Genetically Modified) and which companies are offering non-GMO foods. It's an interesting subject with many different opinions.

Well, everyone have a good Monday. I need one more cup of coffee before I think I'll be ready for my day! :rolleyes:

:grouphug:

Good Morning! I am ready for all of my classes so I thought I would check in. The weather here is also too warm for late September. It is supposed to be in the high 80s/low90s all week. I really would like some true fall weather before winter arrives!

Good afternoon all...cloudy and a bit warmer here, but not as bad as all of you out west and down South:eek:

Sandy, what's the neuro say about Jim's legs? I don't like hearing he's experiencing this...:hug:

Barb, some day soon it will be cooler down your way...you've been getting a lot of rain lately...will it make the fall colors dimmer?

Went for urodynamics testing today...my bladder misbehaved and now we'll see what the doc says...I hate those tests...:mad:

Man, the pain and stiffness has come back full steam. Boo...I loved feeling normal for those three weeks or so...I have a call into the neuro to see about the severe indigestion and this new round of spasticity/balance stuff...

My sis and I talked on the phone last night. There are forces at work to try to talk her into going into a rehab facility...she said no...her hemoglobin rose without a transfusion, so that was good. She thinks she'll be taken out of ICU today, and maybe go home in a week or so...they think she'll have this infection the rest of her life...sometimes I think she's reading more into what the docs say than is there...that's one of the problems of having medical background and being so sick...her eldest son is going to talk to the head doc on her case to see what is really going on.
Thanks for the thoughts and prayers...I do believe they helped. I haven't cried in about 16 hours...and I think she sounded even stronger, except for her anxiety...

Well, I am going to rest up a bit...I am tired from my bladder being tested...:rolleyes:
Have a good afternoon!!