OH books are a good thing....we ahve two bookcases in living room, two in dining room...the kids room each have a book case....we are covered in books..many are kid books...never have enough to offer..hugssss,sarah

going to do some hanging with the kids today, hugss,sarah

Tell me...in the past 4 years I have probably bought 800 plus books! I do trade alot or send them on....going into town today to get the rest of the stuff I need for the kids party this weekend, update more later!

DH and I toke my mom to dinner last night, :( she's just a shell of who she use to be.
She shakes all the time now, she's always shakes when her blood sugar was low so I was hoping that's all it was and after she ate it would get better. Last night it got worst after dinner. :confused:

what does shack mean???
sorry it wasnt fun to see your mom like that....I know tough...hugsssss


Well I havent bought a book in years, just many books from the past...when we lived in Boston area hubby worked for a book publishing company..and when extras from a shipment the workers could pick some they wanted...so lots of education books...lots of kids books...and encyclopedia type...and all...we weaned out some when moved here...but we love books...I should wean thru some as the kids dont use as many as we have...but hey variety....hehe

I am thinking of walking the little ones down to the beach, if my 13 year old is interested...so we can sit the two little ones to play in the sand..and relax with the cool breeze that is always on the lake.....we should get down there more often..in walking distance of the beach....but life is busy....today though think we will...as Ciara the 3 year old is asking to go to beach and take buckets hehehe...

otherwise just chilling, usually hubby and I are off today and tomorrow...but he is working tonight and tomorrow night...so he will be off thsi coming weekend..he is golfing in a tournament with my father....then Sat night hubby and I are going to some show out at casino a comedian.

So I am off usual days, then work this weekend...as usual....but will be nice to get out sat night.

We leave in few weeks to florida...so soon gotta start getting ready for that....maybe bring a body bag for me...since the heat might be a killer...hehe

Well gonna get going, snuggle Ciara..and soon wake the baby...she is STILL sleeping at 10am..bugger...hehehe hugssss,sarah

Julie, Sorry to hear about your mom. :hug:

Sarah, have fun with the kids today.

~~~~~~~~

I'm glad to know I'm not the only one who wonders how books seem to multiply, LOL :D

Of course, it's worse when the bookworms have different tastes. Most of my faves are fantasy based, hubby's are military based like Tom Clancy.

My update: I'm trying to wake up enough to go outside for a little while. My butterfly bush is taking over my porch!!! I never saw another plant that seems to thrive in the heat. At least it attracts butterflys, so it's worth it ;)

Then off to eye appointment. Making a list for the eye doc of symptoms I want to discuss with him. Most troubling has been problems with going from light to dark. sigh.

Have a great day all. :grouphug:

thanks, Kay ... your "leetle grasshopper" is better ... I got a call from a friend last night and we laughed about what we did over 20 years ago when in the Army (we were stationed in Colorado Springs in 1988) .. so, we toured the Royal Gorge and Pike's Peak ... LAUGH! OMGosh .. .I sure needed that ...

the water is getting shut off at 10am (45 min from now) ... but, I'm good - showered, having my coffee with Jenn, and some water for later ...

I guess a part of me is scared - not having an income, and got an email (in my spam from my ex-landlady) so I deleted it without reading it ...

I should be thankful - the maintenance guy came by yesterday and I now have a 'higher' shower head, a knob on the bathroom drain, he tightened the toilet (a bit rocking), and a new stopper for the sink in the kitchen ... AND a parking slot now .. no more 'visitor parking' ..

3rd week of classes - still As ... and great comments from the professors! whew!!

finally getting to the unfinished projects I can get working on ... and found my postcards ... so I can start on them too ...

oh, did I tell you that I received a 3-page letter from the 'disability management people' from my old job from reviewing my appeal I did in February (yes, it was dated July 3) ... and they denied me because I have a brain ... this is what they wrote:

"An MRI of the brain done on April 4, 2007 showed multiple white matter lesions bilaterally highly suggestive of a demyelinating process. An MRI of the cervical spine showed a most significant abnormality is an enhancing lesion, which is on the spinal cord to the right of midline at the level of the inferior endplate of C4 extending to the level of the C5-6 disc."... then goes on to say "There is a mild depression upon the cord at C5-6 and C6-7 as well as mild bilateral neural foraminal narrowing. There is also disc bulging at C7-T1, T1 to T5-6 without evidence of encroachment on the neural structures. It was felt that you have multiple sclerosis and you were treated with five days of IV steroids followed by an oral prednisone taper."

don't want to bore you with anymore ... but its just that this is all on my records and this 'appeal person' .. ONLY a consultant and here is something else: "you were disabled for the period of March 19,2007 thru May 20,2007 due to the acute flare of the multiple sclerosis; however, the medical did not support that the disability continued after May 20, 2007."

well, DUH - I had no money to go to the doctor anymore!! and my whole life was turned upside down with the heat, exhaustion, stress, and now with continual pain in my hip/legs .. and numbing/tingling all the time in my hands ... so "You were not considered disabled under the plan and benefits were denied." ... although after a year, my PCP doesn't want me returning to work ...

it's like no one believes me - and that I'm just making it up so not having to 'go to work' ... and 'trying' to get benefits ...

that's why I was so yucky yesterday afternoon ... as tho I'm not trying - and I'm trying to listen to my body AND my doctor ..

thanks for listening .... I'm just shaking ... trying to do something (at my own pace) .. oh yeh, they even brought up that I'm making $$ from my book I wrote (well, I made $26 last April, and $9 this year) ... what an income! and they commented about preparing tax returns ... so I should be able to WORK a real job .. duh! I've been preparing returns for 25 years - I enjoy this ... and I KNOW who my clients are!!

okay ... sorry about the long post ... hope everyone has a great day!

typo, I meant shake, I haven't sleep much this past week. :rolleyes:

Vonn - I am sorry you were denied. How frustrating for you. However, I had to laugh a little on their comments. They are so ridiculous! Apparently, they seem to think that MS goes away like a bad cold. LOL. I know they are just trying to weed through the people who abuse them and are always in hopes that one would drop it and not appeal. It seems that once one hires a lawyer, things get approved much easier. Hang in there!

Books? Did someone say books? I used to have a ton of books. But then I realized, heck 1/2 of these I will never read again, they are taking up space, collecting dust which means more housework for me. So I brought them to a used bookstore that you can either trade or they give you cash for. So I traded them. (I did keep any book that I knew I would read again as well as any reference books). I still have a bunch of store credit coupons. The coupons are great as we can not only use them for books but for CDs and movies.

I hope everyone has a great day. I'm off to play a few games and then back to painting.:D

oh shake...ok thanks...and sorry you are on lack of sleep....thanks for teh typo update...we all make many of those...oh I spelled the wrong..hehehe hugsss,sarah

thanks, Tricia ... I actually laughed too ... and decided to keep the 'stupid' denial ... and see what SSDI now says (still waiting from the 3rd appeal I made in April) .. and my own PCP is concerned (last month) about my progression (getting worse) than when she seen me in October for shingles and the first time last March!

sure - I didn't like my job .. brought on ALOT of stress ... and I asked (during my LOA) to transfer to another position - and THEY wouldn't do it! and then terminate me saying that 'I didn't try to return to work' .. duh! why should I *try* when my doctor says not to!

sure, the cool wintertime was good for me, but with the increase of sx - my doctor has been voicing her support of me NOT returning to the job of anykind ... (uh, she's the one that WENT to medical school and HAS personally talked with me and has SEEN me!) ...

books?? I downsized alot .. BUT kept all my Civil War books and autobiographies of the First Ladies (before Jackie Kennedy) ...

just pounded somemore nails in the wall to hang my plates ... 10-12 (coffee and side plates) done, and 12 dinner plates to go! have 2-3 serving oval platters - but they will go on stands over the cupboard ...

Hey all! Ok, I think I got mom taken care of. The SS letter came and stated she was not approved for disability because she makes more off her husband. Done. It's been faxed to LTD. The lady in charge of mom's case is sending off her approval for LTD to her boss who then says yes or no. We should hear something soon. She did say she was bypassing the meeting with their doctors. I guess the last doctor report was obvious that she could not return to work.

Now, about Jim. The doctor never called back. So, the nurse suggested Jim to get a second opinion with another doc in the office. We are set up for 8/12 after he gets back from vacation. I was concerned about them being in the same office but she assured me that they are all separate and Jim would not be treated different. We'll see. In the mean time he has a bug that even the nurse has never heard of. I am curious what it is and will ask the nurse today. Jim talked to her and didn't get the name. So I will update later when they call.

Other than that I am clearing off the kitchen table of junk mail. That is a job let me tell you! lol

Hello everyone

Sandy I wish I had magical words for you, All I have is a :hug: an ear to listen to you and prayers and good wishes some of this starts to take care of itself, soon, questions get answers, illnesses get treated, and you keep from going loo loo:hug: you know what I mean more so than you are right now :rolleyes: hang in there:hug:

I had not read what you all may of posted this morning, been outside in this lovely weather, sighs, why cant it be like this all year, got the shed painted, fair size shed, got a quarter of a 2.5 car garage done, the church group called i left the young gent a message that i should be ok on painting, and that I would feel better if he had someone else he could help in more dire need than us, I thanked him again and again.

Was gonna PM you Kay but thought maybe this question, might help us all or others know the answer, when these hurricanes and tropical depression, hit you head on or even pass near by, because of the low barometer readings, does it effect your MS? is it harder to move about? my body is already effected by the barometer from my back injury a long time ago, lately when these bigger storms are going by us I have been hurting a lot more and in different areas, I ask and it may be me or a fluke, since this storm [passed the yucatan, I have had some nasty spasm, muscular pain, skin pain like my skin is stretched tight over my bones, that is the best way to explain that feeling. I just got done with a relapse, I am so hoping someone says yes these big storms do effect, cause i am not ready to slipped back into another, yes its only been two days so shall hold off take these lovely meds and hope, just not in the mood for a relapse

sorry to go on, its just this dang illness can be so frustrating at times

I hope and wish you all a peaceful day and hope the weather stays like this in illinois:Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

thanks everyone


peace

Yuck now Jim is spawning unheard of bugs, I agree go ahead and try the second opinion all though I know yall are getting tired of going from doc to doc...why can't anyone get a doc anymore that says you know what, we're gonna figure this out come hell or high water....that would take too much time and energy I guess after all they only make a mere 150 an hour! Glad your mom is getting stuff worked out though!

And speaking of mom's............:ranting: :Soapbox: :deadhorse:

GRRRR So irritated that A) I think she absolutely does not care that I have MS and need to rest at times and hurt almost all the time....and this woman is a nurse for Gods sake! B) She shows such obvious favoritism towards my son over my daughter and calls her ugly names....like you GD hateful, spoiled little SH** when my daughter has a tantrum.....ummmm shes 2! We got into it over that this morning. C) she has no concept of childproofing...she thinks well I am not doing anything different in MY house you just need to teach her to leave things alone.....My point being...she refuses to cook on the back burners of the stove...even though they are the same as the front burners...for the second time Olivia reached up and with both hands touched a hot pot, thankfully she yanked them off fast and only turned red with one small blister, but grrrr would it kill ya for God's sake to cook on the back? Apparently so.

Ok, I now return you to your regularly scheduled programming.....

And BTW I am moving out of my moms soon, and moving to SC.....more on that later!

Renee, living with the folks is never easy. Hope everything works out for the move here soon.

Frank, I hear ya about the weather. I'm hoping it stays like this tomorrow so I can attack some more of the bushes outside.

Sandy, Hope Jim gets some help for this strange bug he's got.

Weave, glad your hubby's car is back up and running

Vonn, sorry to hear all the insurance stuff going on. They are crazy people sometimes. Hope all works out for ya though.

~~~~

My vision did change a little, but my eyes are physically fine. So is the optic nerve. :) Doc's not sure what to make of my problems with light and dark adjustments, but he did give me some advice to help with some problems I've had. Tried one solution already, and what do you know? - it worked. :)

Hope everyone has a great evening!

Renee, you are so getting a call after I type this! lol

I just called the urologist and asked the secretary to put a birdie in their ears so not to forget us again. I also told the secretary that we are seeing Dr Smith on the 12th and she went on as if that was normal. lol Then she did something that I haven't heard of in years. She asked me how Jim was feeling? A secretary? For real? I mean we don't know these people well enough yet, yet she asked me. Is this bug so bad that they all know it? Those of you in the medical field know everyone knows if they work in the same office. Or...is she so concerned because Jim is getting terrible treatment? Do they all talk about how Dr Sobel isn't doing his job and Jim is suffering because of it? Whatever the reason, it was refreshing to feel like someone has compassion.

Now, on to mom. She may be evicted. Yep, you heard that right. You all know she is in income assisted apartments. Well, apparently they didn't submit her papers until July1st when rent is due. That's fine right? Nope. The SS letter is dated June 30th which now looks like she was getting SS and STD which is over the income limit they require to love there. ONE DAMN DAY, can you believe that? The manager said she is 90% sure mom wont be evicted and will just pay higher rent since she didn't know about it. But then there is that 10% that she will. UGH Damn red tape.

Ok, now Frank. :Hum::Poke::Bang-Head::deadhorsebeat:

Have you lost it completely? The church called to help you and you didn't take it? Just because you feel good doesn't mean you have to turn down help. My goodness man, what are we going to do with you? I get you wanting them to help someone else but the whole point of them helping is so you stay healthier. :rolleyes: I bet Deb is shaking her head at you right?

Ok, off that soap box. Don't hate me Frank. It's the caregiver in me.

I understand:hit-safe: lol um well her heads shakes a lot as it is, for what we have left, it will not take long, for me and chris is helping, what if there an elderly couple they can help who are not doing well, they have a list of names and numbers of locals who are down on their luck and or situations like mine, they helped me out a lot yesterday


renee my 2 cents worth, i think I would tell or ask mom if she is upset at you or begrudging you about something, then take it out on you and not olivia:hug: hang in there renee

Ok, Frank, I understand. But you just came out of a flare and probably shouldn't be pushing yourself. Small steps as they say. I'll shut up now. lol

hmmmmmmmm... me being from Cali and all, and having *zilch* familiarity with tropical storms heretofore... this is something I really notice.

the first time one was a-coming in (back in 2005), I actually thought I was having a hot flash. (lol)

yes, I definitely feel *something* but not sure I can quantify it beyond that.

yes, it gets harder to move around, I feel sluggish and heavy, and achy,and cranky and HOT.

I like your description of tight-stretched skin, it's sort of akin to that, except I suddenly feel restless, like something is PRESSING in (or down) on me.

naturally, my mind being curious, and noting that EVERY time I have had that feeling, soon afterwards, a storm soon breaks over us, I have mentally ascribed it to possibly a low pressure area being forced down and east...

I actually feel much RELIEF when the pouring rain starts, and have been known to dash outside, and stand there in the drenchpour, glorying in the release of pressure, the coolness, and (maybe?) the extra ozone in the air...

so, whenever I start getting that feeling, I mention it to hubby, and he goes and closes the truck windows, and picks up any tools left lying out.

I haven't been wrong yet, lol!

:hug:

um, just because she's a nurse doesn't necessarily mean she has empathy, or understanding, or maturity...

I'm sure she does care, but she just doesn't comprehend the disease, I think.

that's completely inappropriate behaviour on your mother's part, NaeNae.

I had a similar problem with my dad and my middle son... PawPaw got along fine with my other two (who are more easy-going types), but with Matt, it was a major clashing of the wills.

shrotly after my ON partial blindness set it, he visited, and took the kids for a bit, so I could rest... an hour later, they returned, and Matt was crying... his bike had popped a tire, and Matt complained about it, and my dad SLAPPED him across the face...

now I don't hold with verbal or physical punishment of small children (Matt was 6) ESPECIALLY when done in anger, so, I asked my dad to leave, and we never communicated much again... because he's basically a miserable barstool, and I choose not to have people like that near me (or my children)

that's impossible, really, at age two... unless one puts a leash on the little ones, and even then, they can STILL find mischief, it seems.

especially with MS, it's hard to be vigilant 24/7, and your mom really should be a bit more cognizant of your condition, your exhaustion, and your limitations.

it sounds to ME (opinion time, tune out if you want, lol, little sister!) as if your mom is resentful of you being there, and is unable to communicate that to you in a calm adult mature fashion, so, she's being irritable and taking it out on you and Olivia, which is completely unfair, and inappropriate at this time, considering all the stress you are under, with the moving, divorce, and illness.

best thing I've heard all day, honey-angel-baby-girl !!

you need to be CENTERED and calm right now, and your mom's not helping.

I think I understand why your mom's acting the way she is, but it's best to not be in such close quarters with her right now.

:grouphug::hug::grouphug:

love ya, babysis... hang in there.

Renee, I tried to call you!!!! I am waiting on the doctor to call and then your all mine mine mine I tell ya! lol

hey Renee .. I DO like the idea of going back to SC .. it seemed as tho you were comfortable there ...

I just got out from living with my friends from June 28 thru July 16 ... I wish it would of been SOONER ... love'em to death ... but, it was time for me to get out of there - even if it meant living out of my car, I would of done it!! then to move me in ONE night was stressful ...

my friend is a great person ... but, she sounds like she has more aches and pains and sx than I do ... but will NOT ask for a brain MRI!!! and the doctors *say* maybe fibro ... but nothing conclusive ... and won't go to a neuro! (costs too much)

I was feeling guilty for feeling ill and hurting because I didn't want to say anything to her - because then her sx were worse than what I was experiencing ...

sorry for my rant ... just dealing with that and moving - no wonder I've been numb and feeling like doggie-do lately ..

Ummm, Renee? Your phone is busy! lol

Doctor hasn't called yet. What is the problem? ARGHHHHHHHH!!!!!!!

Duh the phone is busy cause I'm online LOL

ROTFLMAO Well, I am talking to my sister now. LOL

haha .. I know the feeling, Renee with dial-up!! ... that's what I've always dealt with until I moved!! (like moving up in the world and getting outta the backwoods was my problem!)

hey, Tricia - here's a pic for ya:: the lake is like glass this morning ... and the sky is blue with just a hint of white fluffy stuff!

UPDATE::

going to try for another load of craft and boxes ... getting to the place where I can get working on projects now ..

hope Frank didn't overdo it with the painting ... I learned the hard way that by overdoing it - emotions and physically, everything just goes out-to-lunch for the following 2-3 days when I do ...

been waking up at 630a without an alarm ... so, I'm going to try to be a little more productive each day .. going to get up to 81 today, chance of rain ...

everyone have a great day!

morning everyone.....not much going on here yet. I am going to have to have Olivias cake made, I was digging around last night and all of my cake decorating gear is packed in storage GRRRRR. Oh well a girl I went to high school with has a cake shop here and she is on the Food Network all the time and her stuff is awesome...gonna call and see if she can rescue me!

gloomy and misty morning here in the jungle...

feels like more rain is on de way.

got the bed made,the laundry done, and the animal feed prepped and bagged, but still trying to SUMMON the energy to get up, don shoes, and go outside to distribute the bounty of cabbage, carrots, lettuce, spinach, callalou, and canteloupe for mah beebies.

the geese are honking hungrily outside the screen door, the chickens, bunnies, and guinea pigs are probably RAVENOUS, and yet... I can't seem to get motating, despite a large cup o'joe.

there's a veritable SEA of ducklings running about (I counted 81 !!), and today's big chore is to carry wheelbarrow loads of sand to the nursery, so it doesn't get so muddy when the rains come...

so, I'm stalling here at the computer, pretending that an hour of chores isn't awaiting my attentions...

:D

Goodness thats alot of duck poopie!

LOL Kay, I have been having a lot of days like that lately. Of course, I don't have 1/8 the chores that you do and certainly don't have 81 little ducklings running around.

NaeNae - I hope your friend is able to help you out. I may have missed the post or don't remember but what kind of cake are you making Olivia? Something animal? Also, you know my "moving back in with the parents" story. It is so difficult to do. Hang in there!

Vonn - Thanks for the morning picture. It does sound beautiful and peaceful.

Sandy - I do hope it stops pouring at your house. Enough is enough. I'll say some prayers for you all that things calm down and start working out for your Mom and that Jim starts feeling better soon. Try to find out the name of the bacteria. Knowing that can be helpful. Sending you cyber:hug:s.

Frank - What are we going to do with you? If there were a slew of people that needed help, the kids would have gone there. Silly man. Besides, you promised the kids a BBQ today for all their help. Can you call and get them back over to help and/or the BBQ?

I know I missed a bunch of you, brains a little slow this morning, so I hope you are all doing well.

Have a good day everyone!

Kay, you should really write a book about your farm one of these days. You have a great way with words. I can just see the angry animals with there wiley coyote signs saying "feed us". :D

I think there's something in the air. A lot of us have been tired, etc lately. :( Hope you feel better soon. :hug:

Renee, hope your friend can bail ya out. It's awesome you know someone who is great at decorating cakes. LOL, I think I did a good job if the frosting manages to be only on the cake. It's close to abstract art for me. :D

Vonn, hope you have a productive day. It's fun working with crafts.

~~~~~~~~~~

Good morning all :) Just sitting here with my usual pot of coffee trying to wake up. One cup at a time, LOL

Have not wanted to get up the past couple of days. Which is really disappointing since the weather is so awesome right now. If this keeps up, maybe should call the docs. ***cringe*** Being this tired is not normal for me, and you know it's bad when I'm thinking of calling in my medical people. Not a big fan of docs. Since I know they can't give me any fatigue meds, a part of me is just not sure what they could do.

Oh well, enough of that talk, LOL. I don't think I'm going to my aerobics class today - woke up too late, but I hope to get in some landscaping later on.

:grouphug: Hope everyone has a great day

I know I did a good job when the frosting stays on the cake.:eek::D Seriously!!! I made a cake for one of DD's b-day with butter cream frosting and the frosting separated and slipped off the cake.:eek::eek: I am not a Domestic Queen when it comes to cooking.

As for the fatigue . . .I know exactly where you are coming from. It gets frustrating after a few weeks of it and then you get so sick of it you call the dr. I too hate calling the "Big Boys" in. I don't want to be poked, prodded, questioned, etc because I hurt and/or am too dang tired to even go. lol.

I too ended up calling the dr and left a voice mail message with the secretary. I haven't heard back yet but I haven't pursued calling again. At my church there are 5 of us with MS. My Mom saw one of the ladies the other day and she wasn't doing well either. It finally dawned on me that its the humidity that is getting to me, not necessarily the heat. Heat wise it has been a mild summer, humidity wise it has not.

Hang in there Fin! Fall is coming soon for you guys. (I have 4 more months of this carp! lol)

Hey Jenn ... remember: listen to your body - and try not to fight it ;)... everyone has been telling me lately - take your time, it'll all come together ...

I'm not the patient of peops :eek:.. are you eating foods with Omega3?? I notice that if I don't have fish often enough, I get droopy ...

no lecture ... just read Kay's post :rolleyes:... got pooped reading it!! LOL:p

Renee ... after I read your post about the cake situation ... ah, get an ICE CREAM cake!! and after you get back to SC and unpacked - then make a cake to celebrate!!

Well, we fired the new urologist. Yep, he called yesterday and spoke down to us as if we were asking for a miracle. He seems to think waiting 34 hours for a call back is not so bad. I told him for the normal UTI, yeah but for Jim he could be in a crisis by then. I also told him we are not seeking special treatment, just the right treatment.

Anyway, after running off our expectations he said we are asking him to cure Jim's bladder just like asking to cure MS. What an ****. We were highly offended. We just want Jim to be UTI free for awhile and not have so many. Find out the problem of WHY he has one after another. Is that so hard? I mean it's not like we are asking him to cure cancer or something.

Anyway, we hired a new doctor and Jim is set up to see him on the 30th. He's from Rush and comes highly recommended by the office. She said her fiance has the same problems and was very compassionate about Jim's ms and constant problems. I was so nervous on the phone and she relaxed me and Jim. Now, that's what we're talking about! Compassion, simple. Wish us luck. Jim stops Levequin on Saturday so that will give us four days off the antibiotic to get a fresh sample for the new doctor.

Live and learn, that's what we have come to know. It doesn't matter where you go, you must be in charge of your healthcare. Never take condescending tones or feel like your just a number on the doctors cell phone. And never, ever accept any doctor speaking down to you and saying your asking for too much. Even if you are, a good doctor will be compassionate and understanding that your only seeking answers and care. Oh, and if the nurses tell you to get a second opinion and even suggest a different doctor, take notice.

Whew, OK, enough of that. Jim and I are headed out to see my cousin today and then get some wrapping paper for my little cousins b-day gift. I am hoping to find Hannah Montana wrap since she is a fan and the party is a Rockin' Hannah Montana party. lol

To all of you have a good day and I hope your feeling better. Jenn and Trish, I know you must not be well if your thinking of seeing the doctor. I hope this doesn't last long and your both back on your feet soon.

:grouphug: to everyone!

ahhhh, Sandy, I know what you mean !!

I really get uncomfortable when doctors talk down to me, as if I was stupid, or a child.

just because I don't know all their big medical words, that's just because I haven't *learned* them yet, not because I'm dumb...

patience, respect, and compassion, that shouldn't be too much to ask.

and I shouldn't have to be constantly reminding myself that doctors are human too... they ostensibly got *into* the profession, because they cared... now why have some forgotten THAT ??

ah well... now you know why I tough out so much... and haven't been to a neuro, or a doctor in four years, despite having SPMS.

some may say I'm crazy, but Rx meds can be gotten here just by knowing the name, having the $$, and walking into a Farmacia...

so, I'm basically self-treating at this point.

but if I *DID* have constant mysterious UTIs you can bet your sweet BIPPY I'd be hammering on some doors for answers and proper treatment.

hang in there honey, you'll get the answers you need, if only from sheer stubbornness and determination, mah deah !!

:grouphug::hug::grouphug:

Sandy I so know what you talk aobut with drs...

I was up most the night with stiffness, and pain....couldnt sleep...took ibuprophen like extra amounts with food....and doesnt touch it...was up till
3am....

so today I decide to call my dr office, my pcp is hard to get into I know, but here I told her I am in pain, stiffness, that started last week with numbness...that I couldnt feel my legs...now stiffness and that my wrists and ankles are in pain...

they put me on with her nurse...the first nurse not her nurse..mentioned meds for pain...that she can give dr note about if they can get me on something...soon....then she sent me to my drs nurse...

so she says my dr is on vacation not back till the 3rd....:eek: that I can see the her pysicians assistant...I said sure I gotta see someone quick...the first apt isnt till next friday....how quick is taht...this area sucks...

and no other drs in practice can see me sooner i guess too...

finally I called back, said hey, I couldnt sleep due to this....the first nurse mentioned how in chart it says neurontin might be next step.....and that she is leaving a note for my dr....but as you said she is out of town for while...do I have to wait a week for, ideas for pain .....

she called me back after talking the assistant....they prescribed me neurontin....I think three doses of 300mg a day....I gotta go pick it up to confirm that....when I asked her if somethign I should work up to...as isnt it like lyrica..you can feel loopy at first on it....she siad she didnt know....check with pharmacy too.....

what a joke finding good care sometimes...here I was talking about pain...that is keeping me awake...and they were gonna just wait till I am in next friday!!!!!

anyhow...this is where I am at....now kindof nervous...to get loopy feeling as I did on lyrica...lyrica didnt help with the tingling pain...ro anything...and I hope to not gain weight with the meds...anyone have experience with neurontin here..hugsssss

sorry for rambling or if this didnt make much sense..haha..sarah

Hi All, :)

I just read the last few pages, hope everyone is doing ok today. :grouphug: As usual, I love reading your updates but I've gotten somewhat behind.

Renee,

When our oldest was four years old, my Dad was visiting once, and when my son went up to him for attention, Grandpa looked at him and said, "No. Bad boy, get away now."

That made me furious. I looked at Dad and said, "Don't you EVER say that to him again!" The poor little guy was just trying to get Grandpa's attention, not doing a thing wrong. :mad:

My Dad looked at me with very wide eyes, said ok, meekly, and it never happened again. :mad2: When I was a kid, that's what he'd do anytime I tried to talk during an adult conversation. I was pretty shy and awkward, maybe that's why? :mad: Anyway, I don't blame you for wanting to move out with your Mom behaving that way.

Vonn,

I'm so glad you're moved in, and you have a nice view of the lake, you lucky gal!

Sandy,

I hope Jim gets fixed up with a new doctor soon! :hug:

Kay,

81 ducklings? How cute!!! :D

My update:

I've had a bit more energy after some med adjustments, and maybe partly because of the Tysabri? Anyway, I'm getting more accomplished at home and I'm thrilled. :) It's probably why I'm MIA around here more often now. I do come and read most of the posts, even though I don't reply that often. Have a great day everyone! :grouphug:

Thanks you guys. I am on the verge of tears. I told this nasty doctor that I will not lose my husband to someone who can't be there for Jim. I told him this is what happened almost six years ago and I will not accept less than quality care. He remained quite for the most part and then said "I understand." RIGHT! I don't think so.

My stomach is churning and I have anxiety all over the place. I thought seeking civilian care would be different but it's not. You must remain in control at all times.

Sarah - I've been on Neurontin for about 5 years now. At 1st it made me loopy in a "had a few beers" way. It really wasn't bad. lol However, once I took that 1st dose I was hooked. I was pain free for the 1st time in a really long time. I did not gain weight. I do tell people that drinking lots of water and making sure you get plenty of protein helps with the loopy feeling. Occasionally, I get that loopy feeling and start rambling nonsense.

I did have to amp up. I did not start at the full dose right away. I now take 900 mg a day and it still is working great for me.

Sandy - I really hope that the new dr works out for you. I know you guys must be so incredibly disappointed. You had such high hopes for this dr and he let you down. You are not asking for much, just that Jim feels better. Any infection for us MSers can really do a number on us. Jim would feel a whole lot better without these infections.

Kay - Amazing!!!! I hate going to the dr. yet I know I have to in order to get refills on the prescriptions. If it weren't for that, I would do exactly what you are doing.

sandy great BIGGGG HUGSSSSSSSSSS

HUGSSSSSSSSSSSSSSS

i love you...take it easy...breath a bit..and remember you found a new dr...and we will pray that this dr is much more attentive...we love you..hugss,sarah