Hay tshadow i like your best wishes little muckety muck i think i just might have to keep that i thought it was cute. Any way new up date my hands have gone back to the cold side. They are very cold i feel normal once again ha ha ha. Well at lest this is what i have been use to for the past 2 years and some. It almost felt like some one flicked a switch we took chico for his shots to night and when we left the vets i went to open the car door and my hands felt cold it was weird how they could just go from burring to freezing. Other then that everthing is the same with me and puppy is happy and healthy. Bye for now

Hay guys well i was in shock last night i was laying in bed watching tv and playing with puppy. The next thing i know my right hand started with pins and needles it stayed for about 2min. Then my hands went back to burning i just sat there dumbfounded i couldn't believe this was happening its been 4 weeks and i haven't had pins and needles once. So i only hope this is just a one time thing but what i truly hope for is the burning well stop i would rather have them cold then this horrible burning. Now for a little rant i was talking to my shrink to day and this week she wont's me to come up with some activities to help pass my time and make me feel better. I am so tired of people saying this to me i no longer can golf, four wheeling or swim or fish those are the things i loved to do. The other things i use to enjoy where darts and playing cards. But with my hands and arms these are things i have had to give up i can play cards but after a game my hands get cramped up. It is not like i haven't tried to come up with something to do and i told her that i have even thought about joining cards but it is just not worth the pain. I am not into reading that much and i am lucky if i can get the weeds pulled out of my flower beds. For &*$# sake i can't clean my house what is wrong with these people she even says in the same breath i know its hard for you to do anything because of your pain and you have just had surgery but think of something. I don't get it ? well that's it for to day i hope your all doing fine and for the ones who need just a little extra i am sending yous good wishes and lots of

Hope you are feeling a little better now. I am really concerned that your symptoms of neurological things are getting worse. All the pins and needles sand the burning say to me that this is a compression or some damage in your brachial plexus. I really urge you to at least call Dr. B.......please protect what you have left.....if it is rsd you need it look as ASAP not waiting no hoping it goes away.

Please look after yourself. I want you to get the best care and make sure that you look after yourself.

As for the activities perhaps the doctor needs to read the booklet you can buy on Invisible disabilities advocate!!! check out the website and tell her that you have been looking into trying to make people understand what you are and are not capable of!!!!! It will tell her that she is full of poo poo in a nice way!!!!! NOT.....perhaps she has not a clue about chronic pain and don't you dare keep anything back from her as all of your talks if you all them.....will be able to support you legally if you need it. Make sure you tell her in no uncertain words that you are not capable of anything!!!!
Let her know about the facts that you are unable to clean and that if u could do things you would!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! and that there is nothing you can come up with!!


lots of hugs
Victoria

Does the psych not even see that the new puppy is yet another attempt to fill your life in a positive way?!!!

You (we all) are already doing what the psych is suggesting, and then some!!!

Why do "they" assume we sit around feeling sorry for ourselves?

I try to be as creative as possible to use my mind while my body has taken this little trip on me...but heck, I'm not Houdini.

uuuhhhh, the frustrations...

OK....am I the only one sitting around feeling sorry for myself?? No joke...ok a little one but then i am sort of depressed...increased the meds and feeling better got out twice this week....

and spent this afternoon after an amazing massage...oh how I love nerve stripping and removing trigger points!!! After I felt good....yeah calm before storm.....I then went shopping and spent 400 dollars (sorry US guys but it really is 400 US as well..... bad for both our economy unless you are gonna buy a Porsche up here....as if on comp!!!!) on a whole huge bag of clothes...won't be able to move tomorrow....cause I spent the night rearranging the winter fall things into the closet and out with the tank tops....and a huge bag for donations....ok Off Topic....I know sorry......venting wrong post to do it in.....

Tam is right your puppy is a great distraction so tell your shrink that you are making homemade dog biscuits and hand stitching a new hoodie for Chico as out there in the East in must be gettn cold at nights like here in Calgary....damn leaves...thank God for Coniferous trees......so Chico needs painted nails and a new leather collar encrusted in the finest sapphires and special walks and somebody has to pick up the doo doo........so you are a busy girl man and all of that after surgery...........

tell her to blow it out her kazoo!!!! (sorry had to say it)

lots of love....(this was intended to be a funny post just so ya'll know....lol)
As well I was serious about me not doing much.....but then this is something isn't it...posting here....might make Focacciatomorrow...

ok enough..time for bed......

love and hugs to all,
Victoria

Victoria, I go in cycles.

First, I have high pain, where I don't do anything, just kind of lay in bed in a fetal position. After a few days or weeks of that, when it passes, then I figure out what I can do within my disability, all as a result of TOS.

Sometimes it's read a book a day. Sometimes it's just t.v., but at least I am out of bed. Other times it's get involved here, or even see a TOSer, write family emails, call family or friends. Or like you said, change the closet from winter to summer. Shop online for new PJs.

Each of those tasks takes a Herculean effort now for me, and each takes away from my health when I'm done.

Oh - and doctors' appt.s always have to be set according to pain cycles and then they trigger another one. There have been years where it felt like all I got done were the doc appt.s.

So I really identify with Mucker's frustration with the psych. I was very active before TOS. Fiance and I used to fly out with a bag to Hawaii, Cabo, Las Vegas, Mammoth, Carmel, and I wanted to show him Aspen and Tuscany, and he wanted to show me Europe...I cooked and have about 100 cook books. I painted and drew in all mediums, photographed, wrote, made Christmas candy. All while working 6 days per week, unless I had enough hours to take off on a plane. I LOVED helicopters. I hoped to get into politics full-time by 50.

If the psychs and docs knew how much of a renaissance person many of us are on the inside, they would realize what an insult some of their comments are...

Hi well good news to day the only pain i had was a bit in upper right shoulder hands felt normal for the first time since before Sept 04 in fact this has been first time pain free in my arms hands. I have enjoyed this day so very much i know this wont last but what a feeling. Thanks girls and hay you can say what ever you wont here if you wont to rant just talk about your feelings what is on your mind or if you have any questions please feel free to do so thanks bye for now

glad to hear it little muckety muck!!

Well Friday was another good day under my belt it wasn't pain free but the pain was like a two. Hay i like like a lot what a feeling i do believe if i feel this way tomorrow i well do a little shopping i have been putting off. I have been in a good mood which makes life even better. Well hope every one has a good weekend chat to ya all later.

If you're feeling good, don't do anything - just let it keep healing!

I think that's where we get ourselves in trouble, by feeling better, then we go off and do something and overdo it!

PLEASE be careful........................................... ...