Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 05-07-2014, 07:49 PM #11
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

I am not sure my words will convey

I'm numb. My teaching career wasn't a fluke but a beautiful epiphany.

I grew up in a very abusive home. I hated school, loved sports and friends. Survived until college. Loved college. Had no idea I could LOVE learning. Changed my career to reach all those kids lost like me.

I have a teammate I teach with. We started the same year, same grade and have stayed together team teaching. Our beliefs and compassion is the same. She's my other half and I hers in the teaching world and best friends outside .

We've never given in, or up when anything was against our kids and their rights.

My career gone. My husband didn't need the report he says. So lovingly he's trying to help me see. He sees the changes and how I struggle now.

Why do I feel I'm in denial all over again starting the grieving all over. Why can't I just face it and move on. My logic tells me to, my mind refuses to accept.

No driving. My utmost independence gone in just seconds. Our active adventurous lives drastically horribly turned 180 and us left trying to collect our bearings. Where to go from here...

I still had hopes of going back in August. Is it the old me in there fighting? I'm not sure.

Peace and wellness,

Jace
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote

advertisement
Old 05-07-2014, 07:51 PM #12
anon062314
Guest
 
Posts: n/a
anon062314
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by Living_Dazed View Post
I am not sure my words will convey

I'm numb. My teaching career wasn't a fluke but a beautiful epiphany.

I grew up in a very abusive home. I hated school, loved sports and friends. Survived until college. Loved college. Had no idea I could LOVE learning. Changed my career to reach all those kids lost like me.

I have a teammate I teach with. We started the same year, same grade and have stayed together team teaching. Our beliefs and compassion is the same. She's my other half and I hers in the teaching world and best friends outside .

We've never given in, or up when anything was against our kids and their rights.

My career gone. My husband didn't need the report he says. So lovingly he's trying to help me see. He sees the changes and how I struggle now.

Why do I feel I'm in denial all over again starting the grieving all over. Why can't I just face it and move on. My logic tells me to, my mind refuses to accept.

No driving. My utmost independence gone in just seconds. Our active adventurous lives drastically horribly turned 180 and us left trying to collect our bearings. Where to go from here...

I still had hopes of going back in August. Is it the old me in there fighting? I'm not sure.

Peace and wellness,

Jace
Thinking of you and big !!!!
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-09-2014), Living_Dazed (05-07-2014)
Old 05-07-2014, 10:05 PM #13
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
Default

Your post really and truly brought tears to my eyes.

I left management consulting and pursued my phd and teaching career in order to have a career to feel more engaged and more fulfilled. The students were so wonderful and there were so many interesting and kind people I met and learned from along the way.

I also talked to the accommodations people at the university today. She couldn't come up with anything other than a tool (i.e. an iPad or an audiobook). I told her I would ask my doctor at Berkeley for her suggestions. I suspect I am also where you are.

There is no mourning period more painful than the one you are entering. It is not one entered by choice.

I'm so sorry- It's one of those brutal transition periods. I've heard of post-traumatic growth--but it somehow seems to undermine the pain of having to move from a place that has given you so much joy.

The only solace I have found is in the hugs of my family. Simple and profound. Your husband sounds like such a soul.

Do mourn. Do be angry. Do take pride in the many of children you did get to reach along the way. Do know that there will be a tomorrow. Until then,
do be kind to yourself.
__________________
The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
berkeleybrain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-09-2014), Living_Dazed (05-07-2014)
Old 05-09-2014, 03:09 AM #14
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

Berkley,

I can't get my mind around this. I feel numbness.

My otologist and neurologist have been waiting on these results. I think they already knew. My husband already knew.

I feel like I have a force field keeping reality away from me. A refusal to accept?

I can say what's wrong. I can hear it. But it ends there.

Time. I keep thinking about time.

This can't be the outcome. I've lost so much already. My family has lost so much.

Yesterday, I remembered back in spring '13 I was trapped in my mind. I couldn't find my way out of my head, so disconnected and no longer the old me. Panic overwhelmed me and fear was ever present and in my dreams also. That incomprehensible reality was horrifying. My soul was tortured.

Whatever I have to deal with now is better than that. This feels different. Horrible, but different. If I had not healed past the point above I would have taken my life. Not now.

At some point I will survive this, like everyone else before me on here. I used to think that by 18 months my life would be healed. That when the lawsuit is over I will be healed cause you wait to settle til you're healed.

It's settled but I'm not healed. ?

Jace
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-09-2014)
Old 05-09-2014, 06:14 AM #15
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
Default

Jace,

I hope you can find some peace today. Keeping you and your family in my prayers.
M-i-m
music-in-me is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-09-2014), Living_Dazed (05-13-2014)
Old 05-09-2014, 08:22 AM #16
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

I cried reading your post. I know the pain. It's like mourning your own death - but somehow having to go on living.

Please try not to give up. Your posts are ordered, coherent and thoughtful. You are NOT without ability. I read your words, and know that you will improve. You are WAY far ahead of where I was at your stage. The neurologist told my husband my case was hopeless.

For now, I'd say, give yourself a little time, and do kind things for yourself. Then, start to look into cognitive therapy. Attention Processing Training transformed my post TBI world. When I started, I couldn't count backwards or even circle all the triangles on a page of simple shapes.

Your passion for teaching is undiminished. I feel that you will improve and predict that you will find a niche helping other TBI patients to do the same.

The brain is amazing - and so are you.
Hockey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (05-13-2014)
Old 05-09-2014, 09:58 AM #17
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
Default

It's true...honor the feeling of wanting to help, even if it may not be in the same setting. You will transition from this to some one different.

Then, there may be another student body to teach. (It's my secret mantra now getting me through).

My lawsuit settled, but after health insurance took their liens (I had no idea they could recoup their costs! I thought that was what premiums were. no wonder they have record profits. how am I ever to save for years of not being able to work!) No closure.

I saw the neuro-ophalmologist yesterday. After almost a year, little change in my vision. Very frustrating. Breathe.

Be kind to yourself. There will be some good change. Some kindness along the way. Some chocolate. Some rainbows. Some hugs. Promise.
__________________
The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
berkeleybrain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-09-2014), Living_Dazed (05-13-2014)
Old 05-09-2014, 10:16 AM #18
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

Quote:
Originally Posted by berkeleybrain View Post
My lawsuit settled, but after health insurance took their liens (I had no idea they could recoup their costs! I thought that was what premiums were. no wonder they have record profits.
Same here! The medical insurance company wouldn't have been able to recoup their costs, if I hadn't elected to sue - so why didn't they have to cover a portion of my lawyers' fees?

It's a total scam, designed to rip-off disabled people for the benefit of lawyers and insurance companies. I will NEVER not be bitter over this.
Hockey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
berkeleybrain (05-09-2014), Living_Dazed (05-13-2014)
Old 05-13-2014, 12:12 AM #19
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

So apparently it's takes about 10 days for the shock to stop. My heart still has a bit of a dust up going on but I'm thinking less 'this is it' thoughts.

I will keep pushing and finding my way. I think of what I do have and I'm so fortunate. I'm rich with love, family, and friendships. I can breathe and walk on my own. Time to make a new life.

Thank you all for your support. I'm out of panic mode once again.

Peace and wellness,

Jace
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
berkeleybrain (05-13-2014), Hockey (05-13-2014), music-in-me (05-13-2014), SarahSmile0205 (05-15-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuropsych Testing completed...oh boy! JulieRN Traumatic Brain Injury and Post Concussion Syndrome 12 01-30-2012 02:35 PM
new, neuropsych testing kdb2010 Traumatic Brain Injury and Post Concussion Syndrome 11 09-27-2010 09:59 AM
Neuropsych testing in September! Gazelle Multiple Sclerosis 6 08-22-2008 08:28 PM
Neuropsych testing......... sugarboo The Stumble Inn 6 02-04-2008 01:56 PM
Neuropsych testing Cedar Epilepsy 5 05-13-2007 10:09 AM


All times are GMT -5. The time now is 01:21 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.