Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-25-2009, 06:02 PM #16
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
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Hi Everyone,
You'll probably laugh at this but there are still days that I swear I am going to beat this RSD and be all better one day. I've had other minor illnesses and have always rebounded. My neurologist told me I have to accept the fact that RSD is here to stay. My daughter and many of the friends on this site have told me I need to talk to someone about it. I have been searching but can't find anyone who is familiar with RSD and takes ins. The one Dr who my neurologist reccommended is a physciatrist and wants $450 a session and his office told me he really just sees you one time for an evaluation (medication prescribed) and then it is $125 for 15 mins. for follow-ups. Not what I'm looking for. I am going to keep searching.
I will say that the RSD seems to be getting much worse. I do still work and to tell you the truth I have to. I live in fear now of losing my ability to work. I don't know how we would be able to keep everything we have worked for or even pay our bills.
I do feel like it is headed that way. Well enough complaining. Every now and then I go through these really down times then I pick myself back up again and trudge on.
Hope everyone has a good (low pain) weekend.
Hopeful
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"Thanks for this!" says:
AintSoBad (09-25-2009), allentgamer (09-26-2009), hope4thebest (09-25-2009), SandyRI (09-26-2009)
 


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