Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-07-2009, 08:07 AM #8
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi there,

Thanks so much for your reply. Getson's office finally called me 2 days ago, I have an appointment with him on Dec 3rd. His website describes his Thermographic Diagnostic Imaging. We have nothing like it to my knowledge in Rhode Island. I am really looking forward to meeting him and investigating his ketamine infusion protocol, because his office is just a mile away from one of my brothers, and an hour from my parents, and they could help my husband take care of me. His protocol sounds intense - 10 day outpatient, followed by 2 days a week for a month to six weeks, followed by 2 days a month for a year. And his office WILL work with workers comp insurance companies.

My other option for ketamine right now is NYC, where hotel rooms are going to be very expensive and which is far away from both my husband's family and mine.

So you liked him a lot? That's great. And thanks again for taking the time to write. I truly appreciate it.

XOXOX Sandy

Quote:
Originally Posted by RottenRSD View Post
Sandy...

I too have a lot of the same problems you have with have the doctors saying you don't have RSD and then many others saying I do. I actually saw Dr. Getson about 2 weeks ago. I had a Thermogram done. Have you had one of those? I was amazed at how clear cut the results were and feel now that any Dr. that says I do not have RSD is a quack. Dr. Getson, told me that my RSD in my leg is more than obvious...which I and many other doctors have seen...but many put in their reports that my leg has no evidence of RSD. Now I feel validated. I knew what was wrong with me...but I have a physical test I can walk in an office with in my hand and say..."here is my thermogram I have RSD what are we going to do about it." I was taken back a little when he told me that what I thought was a pinched nerve in my neck from the accident that flared my leg again is not a pinched nerve but new RSD...not only was I a little surprised, but very surpised that the Thermogram his office does is so intricate that he could tell that.

He was so nice and kind, I said I will probably be back to him in the future for ketamine infusion therapy, but for now to stay the course in my treatment, and possibly consider a SCS...he was right in line with my other doctors, that I have who I finally feel comfortable with. Let me know if you need any names or any help. Keep your head up!
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