Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-26-2013, 10:43 AM #1
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default CRPS grief for the life I had...anyone feel the same? Please?



I've had CRPS for almost two years. I got it after a knee scope and it's now throughout my left leg and foot, and within the last two months it's started in my left arm.

I used to be so active. I payed a lot of tennis, ran up the hill with my kids, was proud of the fact that I wasn't growing old before I needed to, like so many mums I saw... Now I shuffle round my home hanging on to walls and furniture, I have crutches for anything outside the house but can only walk for a few minutes before the pain stops me. I have a wheelchair for everything else. I am not me any more.

I watched a thing on tv today, and I suddenly realised that I have no real friends now. I have a few mates, but no one really close. I have one friend who pops round sometimes for a cuppa, but she's very independent and has plenty of other friends from before we met. So many people I thought were my friends have just drifted away....they just aren't there now. They don't call, don't visit, and it turns out they weren't friends at all.

I feel such a burden. Nobody really wants to go anywhere with me because they need to help me with my chair, my crutches, my pain. I try to be cheerful when I'm out, I have a 'chair-face' that I put on, I'm chirpy and smiley and positive, I don't want to be someone other people see and feel sorry for. But it's still a drag for my family and anyone else. And I hate it. I hate being this person that people avoid.

Does anyone else feel like this? Please say. I need to know I'm not as alone as I feel. Most days I'm ok, I'm positive and I do stuff. Today it's just all caving in on me a bit and I feel so alone with this gnawing, biting, savage condition.

I send anyone who reads this a (((hug))) because then I've got one myself

Thanks.

Bram.
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4-eyes (03-26-2013), AintSoBad (03-29-2013), AZ-Di (03-26-2013), CRPSsongbird (03-26-2013), daylilyfan (03-26-2013), Djhasty (03-29-2013), finz (03-30-2013), pooh_ac (03-26-2013), ~*MouseY*~ (05-03-2013)
 


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