Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-02-2014, 08:47 PM #23
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Vrae Vrae is offline
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Vrae Vrae is offline
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Join Date: Apr 2011
Location: Denver
Posts: 703
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Oh tos, I’m so sorry hon. It is so so hard. No one who doesn’t have this will ever truly get it, which is why I am so very grateful for everyone on this site. When you talk about your exhaustion.. wow do I know what you mean. Crazy tired.

The “you don’t look good today” reminds me of something I saw recently… We may look ok some days, that doesn't mean we are not in the worst pain imaginable. One thing we do is to try our best and hide it. Would you rather we looked like rubbish every day? We get scrutinized when we look fine, but also when we don't!
'You don't look sick or anything...well you don't look stupid. Looks can be deceiving'


Hang in there hon! We’re here for each other!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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