Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-25-2009, 05:38 AM #13
CZZ74 CZZ74 is offline
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Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Brillant Idea Allen

Quote:
Originally Posted by allentgamer View Post
You all are soooo cool! We are so much in the same boat LOL. I read everyone's posts and could have written almost every line when it comes to pain, paranoid feelings, anxieties, etc LOL!!

I bet it is the same when you all read these too.

One of the things I cant stress enough is dont mess around with your pain medication dosages. Like taking less without talking with your doctor. The withdrawals are not fun, and I wouldnt want anyone to go through any discomfort they dont have to. It took me 3 months before I even felt anything I could call normal, and the first month was something that I could only compare to a type of hellish near death experience. So please make sure you talk to your docs, they can work with you making it withdrawal free if that is your goal.

I think everyone will find their own path to dealing with this pain we call RSD, and medication has it's place. So again im not trying to talk anyone out of their pain meds. What happened to me was something God had planned for me. He knew I could handle it, otherwise it would have been different.....I think LOL. I do know I came out of this stronger than I was before, and with a sense of purpose like never before.

With something to share with my RSD family. He knows where we are, and he is right there with you. Did you read what I said...He IS right there with you. He didnt heal me, he gave me a peace in knowing he is right here making a way.

One of the things that work for me, imahotep uses, and it works so well. I call it pain distraction LOL
Plus there is this one nagging thing we all share....

I have a suggestion

Since we all are on the same page, and it seems we all have some good talent. Plus we all know our limitations LOL! We should look at putting together an online biz.
Most groups come together to organize some type of awarness group. Well thats all cool and everything, but we could use our disabilities as a real marketing tool. All we need to do is find what biz.
Quote:
We should look at putting together an online biz.
Allen this is brillant! I'm thinking cz
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"Thanks for this!" says:
AintSoBad (09-25-2009), allentgamer (09-26-2009), hopeful (09-26-2009)
 


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