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Old 08-31-2008, 07:41 PM #29
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JoeMac JoeMac is offline
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Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
JoeMac JoeMac is offline
Member
JoeMac's Avatar
 
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
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Hi Cherie,

For the first month I was in and out of the hospital with the pancreatitus, now it has been going on the 2nd month of this and I am not in the hospital so I am doing everything for myself and some of the time I am OK and mostly the rest of the time I am all messed up.....Actually I don't think that I have gotten MUCH better at all because the first month I was not doing anything for myself so MAYBE I was just the same as now, I DO remember being more numb in my upper body than I am now and my right hand works better then before BUT I still am messed up and still don't feel well enough to go back to work even part time. I see my neuro on the 15th so I will see what she says. I am worried about my job at this point, I thought I would at least be better enough to ease back into work by now.........

This DOES seem to go on and on, well it doesn't SEEM like it. Things really DO go on and on and on....

SO Cherie, do we get any kind of award for going through this?..........LOL

Thanks again, I know you guys in Canada don't celebrate "Labor Day" do you?

We all get 3 day weekends because Monday is Labor day, personally I have been on a weekend for 2 MONTHS anyway.......

Hasn't been any fun though as you know........

Joe



Quote:
Originally Posted by lady_express_44 View Post
It just seems to go on and on, doesn’t it?

The spinal lesion/TM attacks, like this one, are gross. I still say they should put us out for that first 6 weeks. Even though it is still darn hard after that, at least we’d be well-rested up for the recovery phase.

Stress, especially financial, is much harder to cope with when our bodies are messed. I never even knew what stress felt like before my second TM attack . . . the closest I’d ever got to that feeling before was “excitement”.

I'm glad I was here to guide you too, Joe. Trust me, everyone who’s experienced this as been just as freaked or more than you. I wonder if I was lucky that no one could tell me what was going to happen the first time, cause I don’t know if I would have had the strength when I knew how long it was going to take. The second time WAS much harder than the first, cause I knew what I was in for.

Here’s to hoping we’ve paid our dues, and everyone else’s that we care about.

Cherie
__________________
Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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