Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-04-2013, 05:59 PM #18
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Quote:
Originally Posted by Allanira View Post
My sister is very manipulative. Yes I do see what your saying and keep my mouth shut a lot when someone tries to say I don't hurt as bad as they do. Its only when they keep going on and trivialize me that I bite back. Its the whole 1 or 2 slaps I'm quiet its after the 3rd I bite. I also have some hypochondriacs in my family and they are a blast. I have 1 person in my family with MS and she is on a cane, walker and wheelchair depending on how bad she is that day. Shes the only one that can make my sister back off. She is trying to wheedle pain meds from the ones that need it. I have even caught her red handed with my pain meds thats I had hidden when she went to use the restroom in my mom's bedroom. I now keep them locked in my truck and only my husband and I know the code for that. I do know some people do feel it when the cold hits. My grandmother does now after breaking both femurs due to osteoporosis. She can tell you when a storm is going to hit before the weather people know lol.
I am so sorry your sister is being manipulative! It really is hurtful when especially family members aren't supportive. I can't say I know what you are going through but, I can share from personal experience that sometimes it is better to distance yourself from situations like that for the benefit of your own health (and the health of your children). Lord knows you don't need the additional stress while you are caring your precious cargo.

Regarding medications - this is why I personally don't want anyone friends or family to even know I am taking any type of medications. There are only two people (and you all) outside of my doctor and pharmacist who even know about that part of my life. I've watched people come out of the wood works in the past when someone is ill/hurt hinting about sharing meds.. I personally don't want to deal with that so I keep it to myself.

It is interesting how some people after braking bones or with joint disorders do seem to notice weather changes. I never did after many broken bones in my younger years.. but now with my CRPS any temperature change felt on my legs sends me to the moon in pain. It is like an instant electrical current running from my groin to my knees and the night time burn is much worse the colder it gets. I've spent the past couple of weeks testing different types of technical gear to see what will help this and just today I think I have found what will work which I will share about in another thread later. There is also a type of CRPS referred to as 'cold CRPS' that I think makes temperature changes more difficult for those that have it. I was told I have it which is a bummer considering where I live.

I do hope you and your sister work things out..
Tessa
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